← Return to Support Group for Those of Us Living With Mild Dementia

Discussion

Support Group for Those of Us Living With Mild Dementia

Aging Well | Last Active: 3 days ago | Replies (128)

Comment receiving replies
@pb50

I met with my neurologist last week and we reviewed everything. As I said previously, my diagnosis is mild neurocognitive disorder. I did learn there’s no difference between that term and mild cognitive impairment.

I had normal MRI for age. So some age-appropriate level of atrophy. Tests for pertinent genes show I have APOE3 and APOE4. That increases the likelihood I develop Alzheimer’s dementia. The Tao blood levels show I have Alzheimer indications already. It’s coming.

Net-net I am not that interesting to my neurologist any more. Risks of New meds outweigh the benefit for you he says (and I agree). See you in a year.

So where does that leave me?

Today, I struggle most with
* word retrieval
* name recall
* blanking
Blanking is my term for when I suddenly blank on what I'm trying to do. I may be about to google something and i have my phone in my hands and either can’t remember what I want to lookup, or I look at my phone and am not sure what to do next. It’s fleeting - but the most concerning of my journey so far.

*’depression
I have had depression most of my life and take an anti-depressant. But the character is different now. Theres an overtone of futility about it that makes inertia difficult. The Neuropsychologist recommended talk therapy. The Neurologist didn't even respond to that. I guess I will ask my Primary if he knows how to identify options.
* sedentary. Since the surgery for lung cancer I'm on a moving sidewalk between CT scans and pulmonary function tests and my normal RA and my GI doc.. and I tend to just sit down and read. It’s a non productive escape. And I’ve gained 20 pounds in a year - which is certainly not helping anything.

So thats my roller coaster. And I share with all of you to confirm you aren't on a strange island called cognitive disorder by yourself.

Every week i declare this will be the week I will grab this by the horns and crawl out of the abyss - and maybe it will be!

Jump to this post


Replies to "I met with my neurologist last week and we reviewed everything. As I said previously, my..."

Pb50, I admire the clarity and courage with which you approach the situation of your life.
I don't remember if you have pets, but I will share that my dog deserves credit for waking me every morning, eager to start our day with a well-established ritual we both enjoy. Then later in the morning we go for a walk, one to two miles, and a second walk most evenings. I walked off 42 pounds last year!
I adopted Hazel at 71 years old (me, not her), the first time I've had my own dog.
We found an adoption agency that is very careful to establish "good fit" between the dog and the person. When you adopt an adult dog you have a good idea of the dog's personality and you don't need to go through 18 months of puppyhood training.
Hazel helps me stay in the present moment, saves me from my ruminating moods. My wife also has a dog, chosen to help with her difficult health and mood issues.
Despite the cost, they are cheaper than medical persons, and are here for us 24/7.

That is soooooooo my story too. See you in a year and hope you have some marbles left when you come back. No magic pill