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Cranial Pressure, Instability, Platysma spasm, hyoid instability. Why?
Bones, Joints & Muscles | Last Active: Jun 2 10:52am | Replies (5)Comment receiving replies
Before this issue even became painful, my temporal bone CT scan read "quite enlarged right and hypoplastic left" jugular foramen. The pain is much worse now and I think the jugular issues are worse. I think It's my SCJ. My platysma is in sustained constant contraction, visible upon frowning. I was told and I totally can feel a large, clogged lymph node in my collarbone. This issue travels up the base of my skull into my face and my right ear mainly doesn't stop popping. My left SCM seems to be cramping and more painful than the right, even though the right is enlarged. I get pulsatile tinnitus symptoms and spasms in my ear muscles. Occipital neuralgia symptoms to the forehead. right 11th rib slipping. right arm posterior subluxation, crepitus in right collarbone, right shoulder, and less crepitus left shoulder. Blown out lumbar with mild left sided sciatica. Left foot pain. Likely hypermobile spectrum. Mild multilevel cervical degeneration (including the atlas). Very elevated total bilirubin. Feeling fatigued, sick, itchy, GI issues, etc.
Replies to "Before this issue even became painful, my temporal bone CT scan read "quite enlarged right and..."
I agree with the comment above. It certainly sounds like should be evaluated for hypermobile EDS.
I unfortunately, suffer from some of the same issues. I don't have the official hEDS diagnosis yet, as I haven't found someone within Mayo that is overly knowledgeable about it. I just have Connective Tissue disorder listed. the FL campus does have some Drs that are more knowledgeable about it, however I haven't traveled there. I am in Wisconsin.
Hoping to get another referral to a neurosurgeon in Rochester. The thing with Cervical instability, there are not many surgeons that are familiar with doing surgery. I am in some very knowledgeable FB groups for EDS and cervical stability.
I wish you the best of luck. I don't wish this upon anyone.
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Hello @adam717. I combined your new discussion with your existing discussion "Cranial Pressure, Instability, Platysma spasm, hyoid instability. Why?" - connect.mayoclinic.org/discussion/cranial-pressure-instability-platysma-spasm-hyoid-instability-why/ to help members stay in one spot and to see your update.
@adam717, it sounds like you are seeking a better diagnosis while waiting for a possible confirmation of being on the hypermobile spectrum. Should you want to seek a second opinion with Mayo Clinic, you can start that request here, http://mayocl.in/1mtmR63.
@adam717, you are juggling a lot of different symptoms right now, are you able to find ways to cope with the struggle that can come along with many medical issues? How are you doing balancing these symptoms while seeking diagnoses and treatments?