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@canuk

Greeting from Canada. So pleased to see that you folks are sharing your life on NETs. I have nicknamed it NUTS! I am a 78 yr old male that was diagnosed with NETs at age 65. Since then, I have been on a form of Lanreotide called Somatuline Autogel. Every 4 weeks I self inject 120mg subcutaneously with a very long needle . The somatuline is packed in a disposable syringe, is pre mixed, and is very easy to use. It is delivered to my neighborhood pharmacy for pick up. This has been a real help to me since I do not have to see a doctor or a nurse for the injection. As well, with proper refrigeration (ice packs), I can take my medication with me if I happen to be going on a trip. Have hope all. I have survived 13 years with NETs. Still going strong.

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Replies to "Greeting from Canada. So pleased to see that you folks are sharing your life on NETs...."

Welcome, @canuk! As someone living with NETs for over 13 years, you will have a lot of experience and encouragement to share.

I look forward to getting to know more about you. May I ask what type (or where) of NETs you're dealing with? How were you diagnosed? What do you wish you had known when you were first diagnosed?