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@sbtheplumber1

I have Sjogrens, I have dry lips, purple spot on my bottom lip that has been there for a few years . I’ve asked before about Burning Ear Syndrome my PCP, Neurologist, ENT, Urologist, Dentist, Pain management, had never heard of it and even said there wasn’t a code for it. Finally I asked Rheumatologist and she said if it’s the whole ear it’s from Sjogrens and mine might be one ear or the other and occasionally both. So something else to add to my oddball list

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Replies to "I have Sjogrens, I have dry lips, purple spot on my bottom lip that has been..."

Is your rheumatologist with Mayo Clinic? My sister is being referred there because no one can figure out why she’s so sick but we think she has Sjogren’s. We are looking for the name of a good rheumatologist with Mayo who specializes in auto immune diseases. Do you have any doctors there? You would recommend. Thoughts and prayers for you.

In my ear but very low down inside my ear also. Very frustrating ! Haven’t mentioned it at my Doctors appointment as yet. Very itchy a newer symptom.