Welcome @housewrk, You are not alone wanting to get a better diagnosis and wanting to know more about causes and progression of the condition. I was diagnosed with idiopathic small fiber peripheral neuropathy at Mayo Rochester by a neurologist after a few tests and physical exam. That was in 2016 after 20+ years of watching the progression of my symptoms (numbness and some tingling) go from my toes to above my ankles. It was only after years of the progression that I decided to see a neurologist because everyone of on my primary care docs knew what it was but told me there weren't any treatments for the numbness. So, I got the diagnosis and was disappointed to get the same answer about treatments available to help with the numbness which was what first brought me to Mayo Clinic Connect. My neurologist also said my neuropathy was probably hereditary.

There are quite a few discussions and comments by members on diagnosing neuropathy that you might want to scan through while you wait for your callback from Mayo. Here's a link that shows the list - https://connect.mayoclinic.org/search/discussions/?search=diagnosing%20neuropathy

Did your doctor provide a referral to Mayo Clinic or did you call to make an appointment?