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← Return to Prednisone to Kevzara
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Polymyalgia Rheumatica (PMR) | Last Active: Jun 18 11:39am | Replies (31)
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So I was on Kevzara from October of last year until February of this year. Did it work? You bet. Unfortunately I had to come off because it affected my white count, a known side effect. I am retired military and so my cost was not a big consideration. It is easy to administer with the injector pen.
Good luck.
Replies to "So I was on Kevzara from October of last year until February of this year. Did..."
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Are you permanently off Kevzara without any relapses? I had a slightly low white count on Actemra but it wasn't deemed to be significant and it resolved on its own. I also had slightly elevated liver enzymes but that wasn't anything new. I was referred to a liver specialist who said my elevated liver enzymes were likely caused by nonalcoholic fatty liver disease (NAFLD). I didn't have to stop Actemra.
I'm interested in getting off Actemra but my rheumatologist doesn't think it is a good idea just yet. I am doing a bit of a test and waiting 7 weeks from one infusion to the next. I'm at week 5 and doing well so maybe I will be able to discontinue Actemra. I have Prednisone available just in case.