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Surprised and Uncertain: Should I get a second opinion?

Polymyalgia Rheumatica (PMR) | Last Active: Jun 1 4:31pm | Replies (28)
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@glinda47

Are you taking steroids, Stevie?
From what I understand, the US can distinguish among the conditions you mentioned, but as you said in your first post, I am not a doc, only going by the literature. And as we with PMR all know, every day can be different depending on inflammation levels and who knows what else PMR is still a mystery.
How did you access Co-pilot? Looks like you need some kind of medical approval.
I'm glad you're doing well! That's the important thing.

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Replies to "Are you taking steroids, Stevie? From what I understand, the US can distinguish among the conditions..."
stevieb | @stevieb | May 11 8:41am

I've bouncing between 8 and 6 mg of Presnosine for over a year. Been on Prednisone for a total of 3 years. The worst decision I made ( with the ok of my rheumatologist !) was a little over a couple of years ago, ... before I really understood
how dangerous the steroid was
... I asked if it would be OK if I increased the dose to 20mg during a trip for large wave surfing ... It was concern for both performance and safety.
But I was an idiot and my doctor was worse .... That two weeks over medicated, I believe really complicated the weaning process. Up until recently I was still in increasing/decreasing based on severity and length of flares. For the most part now, I have a "tool box" of practices, herbs, and strategies that for the most part minimize the flares. But I've yet to get below 5mg where I can get evaluated for how much of the cordisol encouraging practices have the body begining to make its own.
I have good days and bad days. But unlike previously where it seemed random, I can usually point to an over activity, diet failure, or stress as the source of the pain,.fatigue, or
depression..

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