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VNS Battery replacement is it worth it?

Epilepsy & Seizures | Last Active: May 11 9:32pm | Replies (19)
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@jakedduck1

@joseph1963
I refused the VNS. Is the cough your only side effect? Are you planning to have the generator and leads removed?
Have you considered the Neuro Pace RNS? How often do you have seizures?
Take care,
Jake

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Replies to "@joseph1963 I refused the VNS. Is the cough your only side effect? Are you planning to..."
joseph1963 | @joseph1963 | May 11 9:32pm

I've asked to have it removed. However, they're in no hurry to do it. I'll not consider the RNS simply because it won't get me seizure free. The clearing of the throat is what I have to do regularly during the day,
Presently taking Lamictal and Keepra. Vimpat was recently added, however, the lamictal or Keppra will be removed. About 2 months ago I started taking 50mg. Niacin, 100 mg. Gaba and Bio Perine. Niacin crosses the Blood Brain Barrier (BBB).
Bio Perine is derived from peppercorn. Bio Perine enhances the absorption of nutrition and drugs. Peppercorn is ground fine to make the kitchen table pepper used along with salt.
Niacin along with Gaba was developed in Russia in the 1960's Although it's banned in the U.S. I find it to calming. If I take more than 2 doses, I find it makes me sleepy. Therefore, I only take it in the evening.
6 weeks seizure free. When I usually have 3-6 seizures monthly.
There's plenty of information on the internet. The drug name is Picamilon. If you're interested in supplements, do your homework.

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