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I have ovarian cancer

Gynecologic Cancers | Last Active: Jul 18, 2023 | Replies (162)

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@leannn

@susu2 Hey thanks, sorry to hear about the brain fog and balance issues. šŸ™ I have been blessed there, I haven't really experienced that, but I hear, like you it's somewhat frustrating. Glad you're taking it in stride and at least marking the positives - no nausea and loss of appetite! Maybe the walker will provide a bit of independence and keep you moving to try to push that fatigue. I've been going to bed early and learning to make the best of the times I do have more energy. I imagine you do the same. Well...onward is right.

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Sorry I havenā€™t been posting lately, I was spending too much time reading posts on multiple sites like the Facebook group ā€œSisterhood of Ovarian Cancer Survivorsā€ and all the negative postings were getting me down so I only look when I want to find out about a specific treatment or problem. I guess thatā€™s kind of selfish but I have to be careful I donā€™t get too depressed. I have 3C high grade, Iā€™m 2 1/2 years since diagnosed and am facing my second recurrence. Iā€™m being considered for the Herceptin trial as I have the Her2 gene. Iā€™m excited about this as not too many ovarian patients have that gene, it was only used previously for breast cancer patients. Itā€™s worked well for them so they think why not work for ovarian. I have tumors on my liver, kidney, aortic lymph and abdomen. If you havenā€™t had genomic testing I recommend you do as it shows what treatments are the best per your chemistry. I pray everyday for all my teal sisters and private message me if you donā€™t see me on here. Love and hugs to you all.