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Does anyone have experience with Palliative Care?

Chronic Pain | Last Active: Jul 29 9:27am | Replies (154)

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@becsbuddy

@ebtexas55 I’m a little bothered by your posting. Why do you think that the facility wanted to “strip your legal authority over her”? Is this an experience that you had?

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Replies to "@ebtexas55 I’m a little bothered by your posting. Why do you think that the facility wanted..."

Becky, I apologize that you were bothered by my post.
I too, was bothered by some at the facility because of the decisions I made on behalf of my mother.
Let me clarify that some of this was during covid.
I declined requests that I know my mom would object to.
The other situation dealt with me being asked if I would consider putting my mom on hospice. I asked them “ What for? Shes not in hospice condition”.
I was then told she would
1) get 2 free baths
2) all her supplies paid for
3) a free wheel chair
Those are “selling” items and none of those were advantageous to contribute to her better health.
In fact, she was already getting 2 baths, had the money for the supplies and her wheelchair had already been replaced.
You see Becky, as I said in my post, my mom was not hospice ready. Her health was ok.
I was approached again 2 months later and was asked if I had reconsidered putting in her hospice. Again, I said no, not at all.
This was disturbing to me as well as to my private nurse that accompanied me.
There was no LEGITIMATE Health reason for my mom to be in hospice care there.
However, it was brought to my attention IF I were to sign my mom up in hospice, I would no longer be able to give any medical directives because i would be relinquishing them to hospice and my authority would be secondary.
With that said, she lived 7 months later without any hospice care and left us with a quick hit of pneumonia.
No hospice needed… just as i believed.

And let me clarify again, If i felt she should or wouldve been in the condition to require hospice, i would've signed her up with Hospice of the Valley.
But that would have been generated by me and Not the facility she was in.
I was there often enough to oversee how she was doing. And she was doing great!