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CTX Marker

Osteoporosis & Bone Health | Last Active: Oct 6 11:06am | Replies (77)

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@gently

CTX at 476 within the context of your bone density and six years of no meds, I'd guess that you have luck . If you were starting the sometimes slow process of vertebral fracture your CTX would be higher. Thats provided that you had an early morning, fasting blood draw.
It is wonderful that you ordered your own test. A P1NP at the same draw would give us more information to guess your status. Testing 2 months into medication treatment would give you an idea if the meds were working.
At -4.0 my advice would be to begin Tymlos as soon as you can. If there aren't other reasons opposing HRT, I'd advise a low dose estrodial patch. Having already seen the endocrinologist, you should be able to make a request for the prescription by phone or message (today). Meanwhile be careful not to fall, don't do heavy lifting and avoid exercises that twist the spine. Be gentle with yourself as if you were fragile.
You should question advice from anyone. I don't see a choice here. But I'm not any expert.
The process for Tymlos or Forteo insurance approval can take a bit of time. Ask your endocrinologist for a free sample pen. And ask that she expedite the process.
And keep us posted remembering that we respect any choice that you make without judgement. Bless your bones.

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Replies to "CTX at 476 within the context of your bone density and six years of no meds,..."

Thank you very much.
I am traveling to Italy for 6 weeks in a few days and will certainly be careful. I have a scheduled appointment with my endocrinologist to repeat bloodwork and begin Reclast. As I need a tooth extraction in July, I won't be beginning Reclast nor do I want to. So I'll have to ask her about Forteo and Tymlos at my appointment. Unfortunately I will still need a maintenance drug so I'll be back to the same dilemma in a year or two!
Thank you for your interest, advice, concern and support!

I’m not quite as low, but getting closer. I may start Tymlos and hope I can tolerate it and continue to exercise a lot. I do not want to take any of the follow up drugs. My endocrinologist suggested that I might just be able to stay on Tymlos for life. He’s not in favor of six months on and six months off. I’ve had previous soft tissue sarcoma, so scared to stay on, but Tymlos/Forteo seem like the only drugs I would consider. Any help here on long term use?