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Replies to "CTX at 476 within the context of your bone density and six years of no meds,..."
Osteoporosis & Bone Health | Last Active: Oct 6 11:06am | Replies (77)
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Replies to "CTX at 476 within the context of your bone density and six years of no meds,..."
I’m not quite as low, but getting closer. I may start Tymlos and hope I can tolerate it and continue to exercise a lot. I do not want to take any of the follow up drugs. My endocrinologist suggested that I might just be able to stay on Tymlos for life. He’s not in favor of six months on and six months off. I’ve had previous soft tissue sarcoma, so scared to stay on, but Tymlos/Forteo seem like the only drugs I would consider. Any help here on long term use?
Thank you very much.
I am traveling to Italy for 6 weeks in a few days and will certainly be careful. I have a scheduled appointment with my endocrinologist to repeat bloodwork and begin Reclast. As I need a tooth extraction in July, I won't be beginning Reclast nor do I want to. So I'll have to ask her about Forteo and Tymlos at my appointment. Unfortunately I will still need a maintenance drug so I'll be back to the same dilemma in a year or two!
Thank you for your interest, advice, concern and support!