I am a little discouraged that it is so difficult to find others with low grade ovarian cancer, but I've read through some of the other posts and keep going. Today I woke up in the middle of ther night with pain radiating from my left hip area and pray it goes away soon! I don't know about anyone else, but when the cancer reoccured in 2014, I went through a normal day of work and then developed pain in my abdomen and ended up in ER. Therefore, I must admit to having a little bit of a panic internally (I never worry anyone else unless I really need help). Every little ache and pain triggers a bit of, "is this it, are we progressing to the next level". I'm just hoping and praying it's all going to go away like most little aches and pains. I have a trip coming up and I just want to relax and have fun!

Otherwise, my treatment of fulvestrant and Kisqali continue to stabilize the cancer. This makes 6 months which is celebrated! Fatigue, joint pain, swelling from lymphodema, low immune system, and hip/pelvic pain is what I cope with daily.

Are symptoms of pain, fatigue, and abdominal stomach issues the symptoms for the typical decline? I would imagine so.

I stay very upbeat with my family and my friends. I can relate to some others who comment about others feeling they are so strong or asking them to talk with someone else that needs support. I have no problems doing that and feel useful (I just retired as a school counselor for 25 years so I have a bit of experience talking about tough things.) But, sharing my struggles and having others understand is especially hard because of my attitude and faith. I get the, "you look so good" comment often. No one would realize the symptoms I deal with or the heart felt weighty prayers spoken through the day. I guess to some extent, I wouldn't want it any other way. It allows me to live, go places with my husband, visit my kids, laugh with friends, without getting "stuck" on the hard part of this cancer. Plus, this cancer for me comes after a long line of trials- stroke @ 18 that paralyzed my right side, learned to walk, talk, and speak all over again, 4 open heart surgeries, ablations, pacemaker, and ovarian cancer in 02, reoccuring in 2014 to the fight now. I can't complain, I've been blessed, but it's a heavy load at times. That's why I was just trying to find someone with Low Grade Stage 4. 🙂

Thanks for listening.