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Grade 1 Non-functioning (NF) NET

Neuroendocrine Tumors (NETs) | Last Active: 5 days ago | Replies (45)

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@donnarushing55

If you are considered a candidate for surgery, my advice would be sooner than later. My pNET is in the tail, non functioning and smaller than yours but has metastasized to my liver (many extremely small but there, just the same). I cannot get a definitive answer but I believe the liver involvement along with my age (68) is the reason I am not considered a candidate for surgery. Since my only real symptom is back pain, this is extremely frustrating and disheartening. Take advantage of the fact you have caught it before no metastatic involvement. I know it’s not an easy surgery but a good team can navigate you through it. Best of luck!

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Replies to "If you are considered a candidate for surgery, my advice would be sooner than later. My..."

Thanks for sharing. I will seek surgery ASAP after 2nd opinion from academic medical center. Just worried about quality of life postoperative.