Connect
← Return to Tarlov Cysts: Suffering with severe symptoms, what helps?
Discussion
Tarlov Cysts: Suffering with severe symptoms, what helps?
Spine Health | Last Active: Aug 23 3:49pm | Replies (10)Comment receiving replies
There are no doctors at Mayo who treat Tarlov cysts. There is one neurosurgeon listed on the Tarlov Cyst Foundation website. However, my neurosurgeon ( who trained at Mayo) called her on my behalf about Tarlov cyst surgery and she said she doesn’t do it but is aware they do cause symptoms. There are two doctors listed on the website who are considered the leading surgeons for Tarlov cysts and both do free consultations if you send your MRIs. They are Dr Frank Figenbaum, Dallas Texas, and Dr Rudolph Schrot, Sacramento CA. Their contact info is listed. You do need a Sacrum MRI that includes the coccyx. PM me if you want more information.
Replies to "There are no doctors at Mayo who treat Tarlov cysts. There is one neurosurgeon listed on..."
Connect
@westcom I think there may be some Mayo doctors who treat Tarlov Cysts. It would be worth a call to the neurosurgery department to ask which surgeons treat them if a patient is looking for a consultant with interest in treating them. I don't have experience with them, but was able to find literature about Tarlov Cysts that named my spine surgeon, Jeremy Fogelson, and Ross Puffer, who was a neurosurgery resident as authors when I was a patient in neurosurgery at Mayo. Dr. Puffer may have moved on since completing his studies. In the credits of the papers listed, there is another by Dr. Q, Alredo Quinones-Hinojosa who is at Mayo in Jacksonville, FL. Here are links to the literature I found.
Tarlov Cyst Causing Sacral Insufficiency Fracture
https://pubmed.ncbi.nlm.nih.gov/28521343/
Diagnosis and management of sacral Tarlov cysts. Case report and review of the literature
https://pubmed.ncbi.nlm.nih.gov/15350046/