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Anyone living long-term with DIPNECH on lungs?

Neuroendocrine Tumors (NETs) | Last Active: 12 hours ago | Replies (81)
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Profile picture for gig666 @gig666

Neutoendocrine dyptic tumor on the outside of your lung?
I have not heard.of that type. My research is in the lungs, as that is my problem. How was.yours found, accidental during a other xray.

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Replies to "Neutoendocrine dyptic tumor on the outside of your lung? I have not heard.of that type. My..."
rogo | @rogo | May 10, 2024

Mine is on the lungs , several of them. I was coughing more than normal 8 years ago , had an X-ray and ct scan and thus was discovered.

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leahfromsa | @leahfromsa | May 1 5:07am

@gig666 what she’s talking about is the rare lung disease called DIPNECH. That’s dance for diffuse idiopathic pulmonary neural endocrine.cell hyperplasia.
These turn into carcinoid tumors which are a type of neuroendocrine cancer.
I have that. I just got diagnosed last year but I’m 57.

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