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Support Group for Those of Us Living With Mild Dementia
Aging Well | Last Active: 2 days ago | Replies (241)Comment receiving replies
Diagnosis may be changing…Lewy Body Dementia?
I was diagnosed with Alzheimer’s Dementia (very mild) a few months ago after extensive testing.
Last week I had the final test the, psycho neurological 4 hour test. I spoke the the Psy Neuro this morning. He said my test results were not what one would expect with Alzheimer’s.
He is thinking that perhaps I might have Lewy Body Dementia .
There’s also the possibility of having both types of dementia at the same time.
Anyone have experience with Lewy Body?
Replies to "Diagnosis may be changing…Lewy Body Dementia? I was diagnosed with Alzheimer’s Dementia (very mild) a few..."
@SusanEllen66
Yes Susan, I’m Heather and 53 yo. My dad’s health has been declining since he retired at 72 now 78. I think his cognitive was decline before that but movement issues started at 72 with falls I believe due to depth perception. I’ve suspected Lys for yrs. but all the Drs only have diagnosed Parkinson’s like symptoms with something else going on? Finally he’s been referred to an Infectious Disease Dr (UTIs) and a movement specialist and hopefully he will determine Dads primary diagnosis.
Im so sorry that you’re having to go through this.
***You may want to go to Google two things, your diagnosis Ly Bodies Association and Ly Bodies resource center
These websites are really good for information and I’m talking pretty much everything from why, different types, support, caregiver tips, webinars, etc. ** if your state isn’t listed just pick any of them, I pick NY. ****It is very important not to make your anxious or stressed but start with, not sure how to say this, paperwork like fiances (will) in order, power of attorney, living will, DNR, etc. Again I’m NOT trying to stress you they recommend you do this while your memory is good that’s all! Also there’s a lot of medications that may help you with certain symptoms, I’m sure you’ll come across in literature. ****A lot of support groups out there like Facebook groups, or ask Lys association to help you find resources in your area like Drs, support services, etc. They have a hot line phone # or email.
Hoping this will help you! ****My thoughts and prayers are with you! Dance,Sing, and Laugh for its good for your soul!
Best Wishes, Heather
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I have a close friend who’s been living with Lewey Body for several years now. Her meds have enabled her to continue living a productive life much longer than she expected