Does anyone have DISH and/or OPLL?

Diffuse, idiopathic, skeletal hyperostosis. That was what it was given as a more recent terminology. I think it describes it a little bit more. It is also known as Forsters disease. Forster coined it I believe in the 1950s. I think it was given the dish name in the 70s.

yes

My daughter was only 26 when she was diagnosed after collapsing and her neck shattering into her spinal cord leaving her a C5 quadriplegic. Would love to know more from you as she only came home from the hospital and I finally have a bit of time to research this. We are Caucasian, no Asian in our genetics and she doesn't have the other possible links like diabetes etc...

I am so sorry that you have two people in your life that have this. You didn’t indicate whether your partner was her father. That may show a stronger component that it could be hereditary. They do believe it could be hereditary, and there are a lot of similarities with people who have it, but not everybody follows that cookie cutter pattern.

I do follow a lot of the cookie cutter pattern. It’s hard to tell because my father died at 42 and I don’t know if he had it or not. I know he had arthritis and I know he had elevated uric acid levels because they diagnosed him with gout. I have elevated uric acid levels, but not really symptomatology of gout. So I actually take cherry capsules to reduce my uric acid levels. I also have an elevated triglycerides. . I have elevated uric acid levels, but not really symptomatology of gout. So I actually take cherry capsules to reduce my uric acid levels. I also have an elevated triglycerides which are known to occur with this. I do have diabetes, but it’s not out of control except for when I get an injection that contains steroid or I’ll see if I’m going to be dealing with that because I just for the first time got an injection in my knee of Durolane. This could make my diabetes go out of control, but I guess we will find out. Post injection one day and my blood sugar is up, but I will monitor it.
Again, my heart goes out to you, but I recommend that you continue reading. I am certainly older than your daughter and I believe that I’ve been going through some of this since I was in my late 20s starting out with bone spurs on the bottom and back of both heels. But I didn’t let it stop me, I had a major weight loss in my mid 30s and it took a lot of blood sweat and tears accomplish that and all the time in the gym may or may not have helped me with this issue that I didn’t know I had yet. I was 40 years old when the spine specialist told me I had arthritis up and down my spine, but he didn’t say to me That I had dish. He told me my spine was significantly older than my chronological age.
But I have it And osteoarthritis. Both of them wreaking havoc throughout my body. I get shots in my back and probably will have to get them in my shoulders again again, but maybe something different this time.

About to get a second opinion on my shoulders or told me that no one will touch one of my joints in my shoulders. I have a partial tear in my left shoulder and shoulder joint is shot in both sides. They told me they could scrape the actual shoulder and get the bone off of bone.

But by the grace of God, I can still work full-time and the medical people are helping me keep moving. Don’t get me wrong. I do rest and I put heating pad on my back and I just got something to wrap around me to include shoulders, etc., for the heat.

Please please please keep reading. This disease has been around they believe for thousands of years, but it was actually coined Foristers disease back in the 1950s and then Resnick coined the term DISH. DISH is a more descriptive term of what it is.

Hugs & prayers to you and your family!🙏