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High or Fluctuating Chromogranin A Level: What does it mean?

Neuroendocrine Tumors (NETs) | Last Active: May 10 3:50pm | Replies (175)
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@siluka

i actually feel good since surgery. I have had check up every 6 months since surgery. they found 1 lesion hypervascular on ct then sent for pet ct scan and no up take (may 2023) mri in october 2023 and it showed 3 lesions on liver undetermined. Had ct scan yesterday and mri on Monday. then see my surgeon in June. Digestive after surgery has been great. I can now eat food i couldn't eat before used to get GERD badly. I did have 1.5m of my ileum removed

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Replies to "i actually feel good since surgery. I have had check up every 6 months since surgery...."
Teresa, Volunteer Mentor | @hopeful33250 | May 10 5:59am

That's wonderful that the surgery helped you, @siluka. Being able to eat without a lot of digestive issues is great. Posts, like yours, encourage others who are facing surgery.

I'm wondering if there was a specific eating plan that helped you after the surgery of the ileum? Any do's or don'ts that you might want to pass on to others who are anticipating this type of surgical treatment?

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