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Anyone experienced Bone Marrow Transplant with TP53 mutation?
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: May 9 4:42pm | Replies (20)Comment receiving replies
Hello Lori,
You once commented on a response I made about finding a specialist for MPNs. I am now post Polycythemia Vera Myelofibrosis and will be getting a Bone Marrow Transplant. I have my first meeting with the transplant team at the University of Michigan Cancer Center May 13th. My transition to requiring a BMT happened quickly so my head is spinning a bit. I understand you had AML so the conditioning may be a bit different. As I’m sure many of my questions will be answered during this meeting, do you have any suggestions?
Replies to "Hello Lori, You once commented on a response I made about finding a specialist for MPNs...."
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Hi @clareaq Sounds like you’ve been in a little whirlwind the past couple of months! I’m so glad you reached out…I’ve got you and I promise you’re not alone on this new, unfamiliar path.
I’m like to shift our conversations over to another discussion. A few years ago I started this conversation with others who have had bone marrow/stem cell transplants.
~My bone marrow transplant story: Will you share yours?
https://connect.mayoclinic.org/discussion/my-bone-marrow-transplant-bmt-story-will-you-share-yours/
There are a number of really helpful suggestions posted throughout the many replies that brought up what to take for lodging, a long stay in the hospital, recovery, etc.
Another great discussion which was recently started:
Husband facing a stem cell transplant:
https://connect.mayoclinic.org/discussion/husband-facing-a-stem-cell-transplant/
With @mary612 whose husband will be receiving a transplant in June. Another member, @katgob just underwent her transplant a month ago.
I’ll be posting a reply to you in the other discussion so we can Connect over there! ☺️