Connect
← Return to Anyone been mistakenly diagnosed with MAC Lung disease but not MAC?
Discussion
Anyone been mistakenly diagnosed with MAC Lung disease but not MAC?
MAC & Bronchiectasis | Last Active: Jul 19, 2024 | Replies (31)Comment receiving replies
If you have repeated sputum cultures and you continue to grow MAC, most bronchiectasis specialists would consider that to be an infection. Then, it is up to you to decide whether or not you want to go on treatment. It would be based on if you have cavities, your symptoms, and progression of your CT scan.
Please know that there is a clinical trial for two antibiotics versus three. It’s been ongoing for years, has close to 450 people enrolled and they are looking for another 20 or so participants to complete the trial.
Best,
Linda Esposito
Replies to "If you have repeated sputum cultures and you continue to grow MAC, most bronchiectasis specialists would..."
Connect
Hi Linda,
Do you know what are the antibiotics dosages ? I was also diagnosed to Mac Lung disease on 12/22. I have not started the antibiotics yet. My second cat-scan ,7 months later showed the Mac has moved to a different location and less amount of Mac was seen. First 5 months of this year was very though, I keep getting lung infections and I was given short term antibiotics every month. Some of my sputum test results are negative and some positive for MAC. I was told to start 2 antibiotics with high dosage, but my another doctor thinks the dosages are too high. So I took one medication and I was told to stop so they can figure out what is the right dosage for me. I look really sick and this condition has really impacted my life. Some days my mouth taste really bad and mornings are worse for me. There is a new cat-scan with less radiation. I am so lost. 🙁