Dr. first tried IVIG, but hepatitis inflamed liver. Then plasmapheresis about 10 years ago;
there was a slight improvement after that 1st treatment, but not after that. Medical team kept me on plasmapheresis for 6-7 years with no improvement.

When first neurologist retired, I'm still searching for a replacement. these2 years +. I'm hopeful that there is a neurologist with an effective treatment.

Actually, with supplements chosen for my symptoms, I'm stronger and more active without any medical interference. ..including plasmapheresis which only depleted my energy for 3 days!

Yes, I endure weak limbs, tremors & fatigue, but I also can do basic house keeping, as long as husband does grocery shopping. I do use rollator & cane.