← Return to Son has DEE-SWAS epilepsy, heart rate spikes & genetic mutation

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@crazykbl

I don't know if you're going to a children's hospital or is this a children's hospital but they should have a genetic testing at the children's hospital or how far you're from a children's hospital. I had a friend and I had a friend with a daughter that used to get seizures and her sleep her heart rate would go really fast when she didn't get enough of sleep or should get really hot and sweaty and get all the symptoms your son I'm sorry it must be very my thoughts and prayers go out to you and your son.would get today caught it at a children's hospital with a child and his neurologist. Go take her about 45 minutes to get out of it. I hope there's a children's hospital they would send you to a specialty like that genetics testing 🙏🙏doctor. Have they ever mentioned super ventricle tachycardia to you.

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Replies to "I don't know if you're going to a children's hospital or is this a children's hospital..."

Ucsf has a good pediatrics program I believe … all his specialists are there but his genetic mutations are so rare that they don’t know much they said.

So maybe Mayo may or may not know more but all I can say we at least tried when we go out to Rochester in June.

Thats definitely a differential - seizures