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How do I get a call back from clinicians?

Lung Cancer | Last Active: May 11 11:12am | Replies (8)

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@lls8000

@abob, I can't imagine how deflating it is to still be working through this situation weeks later. You're correct to be frustrated and confused.
I'm fortunate to be seen in a health system where all specialties, care centers, and labs are under one umbrella. Everything doesn't work perfectly every time, and they too are struggling with the demands of many patients, and not always enough caregivers, or general staff. Based on your story and the stories of others I've come to feel grateful for my own set of treatment teams.
I would think the surgeon's office would only want you there after they have all of the info from the oncologist. The surgeon's office has asked you to keep the appointment, so for now, that's the plan that I would go with. I would certainly call late on Friday or Monday morning (if the appointment isn't first thing in the morning) to verify that everything is in place. You could also ask the oncologist's office if they've spoken to the surgeon too and remind them of the Monday appointment.
I hope this is resolved for you and your husband soon.

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Replies to "@abob, I can't imagine how deflating it is to still be working through this situation weeks..."

Thanks so much for your reply Lisa.

Yes we are going to surgeon appt on Monday, but concerned that surgeon will say why are you here, and we’ll need to explain, then have him say I’ll need to speak to oncologist. Oncologist made it seem to us that time is of the essence.

I certainly understand that there are many patients, but getting no response for 3 weeks (since CT was resulted on 4/15) seems unprofessional and uncaring.

Yes, I have reiterated the appt date via several venues - in office for weekly blood test, left vm on clinician phone line, submitted request via online patient portal. I only once received 1 response that office is awaiting dr call back. We feel let down by oncologist.

Just thinking how we could make best decision if no definitive clinical direction. Might a PetScan perhaps reveal if cancer specks remain in adrenal gland?