I hesitate to suggest anything in case it puts you in a tailspin. I'm nothing remotely like a health care professional, so please take what I say with some caution: it might be a tumor on his adrenal gland, or he has an endocrine problem with his hypothalamus or pituitary gland...not sure which or if. Unless he has an electrically disordered heart, and that can be determined by a mapping procedure (catheter through his groin up into the heart and a probe looks for spurious voltages where they shouldn't be), he is probably responding to adrenalin rushes, perhaps due to vivid dreams, or for some other reason.

An electrophysiologist is a heart rhythm expert who can map out his electrical system for malfunction. They can 'challenge' the heart using several drugs, from caffeine to epinephrine, from isoproterenol to adenosine, and make his heart beat quickly and become stressed. They'll find the place where the disorder lies. But if they insist that he's okay electrically, then there is an endocrine disorder or a tumor...that's all I can think of.

Keep pressing the various experts for a diagnostic that might show something. And, I wish you hurried success.

Have they mentioned anything about inappropriate sinus tachycardia . Have they did a tested his cortisone. Have they tested for adrenal insernificancy. I might have something wrong with his automatic nervous system. I'm not a doctor I'm not a nurse but it sounds like you have something wrong with his automatic nervous system. Ask the doctor is it inappropriate sinus tachycardia as it is adrenal glands like adrenal insernificancy or is it. Is there something wrong with his automatic nervous system. He could be getting dehydrated while he's been sleeping. I try to cut out caffeine before he goes to bed. Check his vitamin D12. Maybe check his sugar levels. 🧐🤔🙏🙏🤣 Hang in there hope things get better. 🤨

Have they ever tested him for his disease that can be a genetic disorder. A blood clotting disorder.

I don't know if you're going to a children's hospital or is this a children's hospital but they should have a genetic testing at the children's hospital or how far you're from a children's hospital. I had a friend and I had a friend with a daughter that used to get seizures and her sleep her heart rate would go really fast when she didn't get enough of sleep or should get really hot and sweaty and get all the symptoms your son I'm sorry it must be very my thoughts and prayers go out to you and your son.would get today caught it at a children's hospital with a child and his neurologist. Go take her about 45 minutes to get out of it. I hope there's a children's hospital they would send you to a specialty like that genetics testing 🙏🙏doctor. Have they ever mentioned super ventricle tachycardia to you.

Sorry another thought has come to my mind you should say does my kid have white Parkinson white wolf syndromewolf syndrome. You should ask the cardiologist to send you to a EP doctor.

One other thought, but I'm sure this has been tested and ruled out by now: hyperthyroidism.

I have SVT (Supraventricular tachycardia) it is in the family big time. This cardiologist I have is a testing freak. I finally had to say after $10,000 of testing with different tests...stop! I do not have money tree in my back yard. I did a stress test...I get on the treadmill and my heart is already pumping at 147. When he tells me walk slowly...my heart, within
1 min 47 sec, shot up to 165. So, that is the limit they stopped the testing. I failed miserably. The beats were shooting downward and upward. The heart doc says we have to do a nuclear stress test. I said no...no more tests you should have enough results to make a conclusion. He did not want to be bothered with me anymore because I refused more testing. My family doctor has me on 50mg of Metoprolol 3x a day...I still get papitations and when i go to bed all I can hear is my racing heart. My BP is always high and my RBC count as well. Doctors just seem to give up on a person when they cannot find an answer OR they test you till you are financially in a bind. I am also on meds for hypothyrodism...and it is when i take the synthroid that my heart really starts beating fast.

I’m sorry. So frustrating. Yes the testing is just endless. Draining time, money and sense of well being.

My wife has hypothyroidy and must be tested at least once a year to ensure she's getting a safe level of synthetic thyroxin. Sometimes the levels fluctuate for no apparent reason. Do you have a recent endocrinologist's assessment?

My sister-in-law also has arrythmia (AF) when she goes to bed, but rarely at other times. This is surprisingly common, and may not be related to your thyroxin exposure.

I have had to endure two MIBI stress tests where the radio-opaque dye is injected into an IV as you get near your maximal heart rate during the treadmill portion. I would avoid those just for the sake of keeping your radiation exposure to a minimum, but I didn't challenge them since I'm not an expert. I ended up with an ablation by an electrophysiologist, but not until the second MIBI, two years after the first, and not until an angiogram to ensure no blockages caused by plaque in my coronary arteries.

They call the shots if you want their care. If you insist on calling the shots....................................

I don’t know if they are heart related , seizure related or sleep apnea related. Or maybe all three.

I found some studies relating the three to sudep but I can’t post links . Oh well