← Return to Chronic Inflammatory Demyelinating Polyneuropathy and IVIG reactions

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@church5x

I have been doing IVIG for just a couple of sessions so far. I have had 4 (first dose was a double dose over 2 days, then 2 more followed every three weeks). Although I do not feel 100%, I am able to walk, go up and down stairs, and my hands are working better. I do get headaches following treatments that last several days. I drink A TON of water to try to avoid this. I guess the IVIG dehydrates you. I feel fortunate that I have responded to treatment. At one point, to leave the house, I was in a wheelchair. But I do not feel like myself. It's life changing. My nerves feel like they are shooting all around, just strange. Since it's so rare, I have not found much support out there. I am attending a workshop this afternoon via "Shining through CIDP".

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Replies to "I have been doing IVIG for just a couple of sessions so far. I have had..."

I get fluids before and after my IVIG and they administer it slowly. That seems to help with side effects.