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Surprised and Uncertain: Should I get a second opinion?

Polymyalgia Rheumatica (PMR) | Last Active: Jun 1 4:31pm | Replies (28)
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@glinda47

Hi Kate,
I am unable to take steroids, but there are other things to try. I'm glad this worked for you.
I had blood tests last month that showed normal range inflammation markers along with other labs that were also within normal parameters. In a few weeks, I'll be seeing my GP for annual checkup and will ask for these to be checked again along with CBC and other measurements I like to have reviewed.
Thanks and best health to you.

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Replies to "Hi Kate, I am unable to take steroids, but there are other things to try. I'm..."
nyxygirl | @nyxygirl | May 13 7:31am

hello @glinda47 I've been thinking back to the onset of my PMR last April/may 2023. The sensation of the "gelling phenomenon" so the descriptions in this manuscript , and the uptodate.com site ( copied and pasted, attached) put me in the PMR-bucket for sure, so to speak : )

" limitation of active shoulder abduction" -- has anyone examined you physically? I absolutely did not want to lift my arms above my head pre Dx and while on sub-optimal dose of Prednisone.

AND - I also had 3 tests for Lyme /tick-borne disease ( all negative). My boss' sister was rather young to suspect PMR for her 'pains" - she had Vit D deficiency !

This article ended up concluding a fungal disease !
https://www.nytimes.com/2019/06/05/magazine/hip-shoulder-pain-polymyalgia-rheumatica-diagnosis.html
I hope you'll figure it out soon - but who sent you for the Ultrasound - your PCP?-is that your "doc" ?

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