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Regional complex pain syndrome

Chronic Pain | Last Active: 4 days ago | Replies (21)

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@leigh123

Sorry you are going through this, CRPS is a monster that I wouldn’t wish upon my worst enemy

I had adfc C6/7 18mths ago, I woke from surgery with a tingling pain in my right leg, and my neck arm symptoms were worse than before surgery, my neurosurgeon assured me it was just inflammation and nothing to worry about.
3 months after surgery, the pain was excruciating affecting my entire right side head to toe including my face, I knew something wasn’t right!
I seen multiple drs had multiple scans and tests, came back that the c7 nerve was damaged
12 months ago I was diagnosed with right sided ipsilateral CRPS. Type 2 in upper quadrant and type one in lower.
I have attended physio 3x week and have done for the last 2 years
I have tried multiple different medications, from gaba to Lyrica but neither provided enough relief and both had horrible side effects, so I am on opioids
In January I had an 8 day continuous ketamine infusion, did absolutely nothing for the pain just made my limbs super weak.
Neurologist did bloods and a lumber punch to check for MS which luckily all came back negative.
I have just finished a block of 3 sympathetic lumbar blocks which didn’t work, they actually made my lower back really sore, to the point sitting and standing were a huge effort, last week I had my first stallete gallian block, again nothing for the pain and a lot of aggravation in the area, booked for my second neck block next week but hesitant about continuing with the next 2.

I also struggle to walk, but I am determined I am not going to need an aid, I am both mentally and physically exhausted, starting to loose hope that any dr can treat this.
My problem is I try and push through the pain to keep as much normality in my life as possible but unfortunately my body can’t keep up and I put myself in flare

Hopefully one day soon we both find relief

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Replies to "Sorry you are going through this, CRPS is a monster that I wouldn’t wish upon my..."

Hi I hope you can find some comfort and peace this is horrible excruciating pain I have tried multiple things and I understand where you say you can't sit or stand or walk cuz I was like this to I push myself everyday to try more and more dinner's days that I just don't have it in me.