First Appointment at Mayo Clinic in Arizona

Posted by themurfs @themurfs, Mar 3 5:28pm

My husband called to schedule an appointment for a second opinion for his prostate cancer treatment. We sent in all his pathology and scan results. When MAYO called back my husband was given an appointment with a Urologist at Mayo. Can anyone help us with what we can expect for this first appointment? We had really hoped we would be scheduled with a Radiology Oncologist so we could discuss treatment options. It seems like we are having to start back at the beginning with having to see a urologist. We live in Oregon and will be traveling out of town, obviously, so we want to make certain booking flights, and a hotel room will be worth this first appointment. We would really like some feed back on this as we navigate what to do. Thank you!

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

@themurfs

Do you mind if I ask why you finally chose surgery over radiation and hormone treatment? If you are uncomfortable sharing I completely understand. Thank you again for being willing to share your experience. Are you happy with Mayo in Arizona?

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Why did I choose surgery over radiation? That’s a good question! I did a “180” from my original plan. As I learned along the way, you can pay upfront once or start paying for ever after 5 years from the effects of radiation. I’ve been an active person and wanted to continue that lifestyle, and so did my wife. The Mayo Clinic did not try and persuade me one way or the other. It’s been 2 1/2 years now, and I’m happy with my decision. Good luck with yours too.

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@jerryegge

Why did I choose surgery over radiation? That’s a good question! I did a “180” from my original plan. As I learned along the way, you can pay upfront once or start paying for ever after 5 years from the effects of radiation. I’ve been an active person and wanted to continue that lifestyle, and so did my wife. The Mayo Clinic did not try and persuade me one way or the other. It’s been 2 1/2 years now, and I’m happy with my decision. Good luck with yours too.

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Thank you so much for your candid answer. My husband finally made his decision to have surgery and pretty much came to the same conclusion you did. His surgery is on June 5 and we will be traveling to Mayo on May 25. I have to say we both have a peace about his decision, but there is definitely so much unknown and it is still scary. I'm glad that you are doing well and it does give us hope. Again, thank you for your response, we really appreciate it!

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@jerryegge

Why did I choose surgery over radiation? That’s a good question! I did a “180” from my original plan. As I learned along the way, you can pay upfront once or start paying for ever after 5 years from the effects of radiation. I’ve been an active person and wanted to continue that lifestyle, and so did my wife. The Mayo Clinic did not try and persuade me one way or the other. It’s been 2 1/2 years now, and I’m happy with my decision. Good luck with yours too.

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Oh, and my husband did a complete 180 also. He was totally leaning on radiation and we got three opinions From radiation oncologists. It took him long time and a lot of research to finally come to his decision but once he did, we both felt so much better!

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@koji480

You are so fortunate that they are seeing your husband. I made repeated attempts to make an appointment but was denied by a nurse named "Kathy" in spite of the fact that I have advanced prostate cancer and have undergone surgery, radiation and ADT.
Apparently I don't meet their criteria to be seen.

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Thank you @gently for making me aware of this post. You're right that insurance may be a contributing factor. To find out if one has insurance coverage that works with Mayo Clinic, one can contact Patient Account Services in the Insurance Department https://www.mayoclinic.org/patient-visitor-guide/billing-insurance/contact-us

@koji480, I'm sorry to hear that you were unable to get an appointment at Mayo Clinic in Arizona. That is a gut punch. You may wish to try at one of the other locations in Rochester, MN or Jacksonville, FL.

I see you also started a new discussion to gather experiences about other institutions. I will tag some members there to help you get different perspectives. https://connect.mayoclinic.org/discussion/alternatives-to-mayo-clinic/

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If I can help you in anyway, please let me know. Jerry

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@jerryegge

If I can help you in anyway, please let me know. Jerry

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Hi Jerry,
Are you replying to me?

Regards,
Daniel

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@koji480

Hi Jerry,
Are you replying to me?

Regards,
Daniel

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Yes

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Mayo does not accept Medicare advantage plans.

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@jerryegge

Why did I choose surgery over radiation? That’s a good question! I did a “180” from my original plan. As I learned along the way, you can pay upfront once or start paying for ever after 5 years from the effects of radiation. I’ve been an active person and wanted to continue that lifestyle, and so did my wife. The Mayo Clinic did not try and persuade me one way or the other. It’s been 2 1/2 years now, and I’m happy with my decision. Good luck with yours too.

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Proton radiation 2010 at Loma Linda Hospital..one of the first to treat prostate cancer with proton radiation. From what I have learned over the years, the issue of radiation or surgery depends on the level of cancer. I had Gleason 3 plus 3 and PSA: 6.47 I notice the PSA increased 2 points over one year; biopsy and confirmation of localized slow growth prostate cancer. Even today, many physicans are not well informed at to proton radiaiton thereapy, so "you" must do your homework and ask the correct questions which means "you" must be educated on all metrics of this disease. Always get a sccond opinion..even perhaps a third. Many insitutions who provide proton radiation like Mayo do not accept Medicare Advantage. I have TriCare for Life which paid the entire bill which was nearly $100K. This did ot include the rental car and accommodation for the 2 1/2 months at Loma Linda. Now the treatment is much shorter..and that depends on the gravity of the cancer. Lastly, each morning, I would meet with various men who were awaitng their turn..breif convesations would commence. I recall that over 60% of the clients were physicans. This validated my decision to forgo surgery and elect proton radiation as a life decision. Again, measure all the metrics, obtain different opinion and give some weight to the comments on this site. Cheers!

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@tuckerp

Mayo does not accept Medicare advantage plans.

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tuckerp It's my understanding that it is only Mayo AZ won't accept an Advantage plan. Check with MN and FL to see what plans they do accept.

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