Does anyone suffer from Crohn's or colitis?

Mine is lower colon ( descending and below) so not sure if that matters

@blu15 DX in 1987 with UC then changed to Crohn's Disease in 2000. I am 53, so I have been through a lot of different treatment regimens since the '80s. My new Gastro put me on the FODMAP diet, which I had never heard of, in addition to Rinvoq (which has a lot of worrying side effects, but so far so good). The diet looks at reducing foods that may upset your stomach and leave residue with the aim being to ease your GI distress. Take a look at it. I know it is overwhelming to get this diagnosis, but people land all over the spectrum as far as how much it interferes with your life. Stay positive and ask your Gastro a lot of questions.

Mine started out in the lower colon so I think it works for inflammation in the whole area.

Hi! Im 64. Was dx'd about 15 yrs ago with crohne's. I was well past the average age of "normal" diagnosis. No matter had an emergency 3 way reaction, removing of a fistula from sm bowel to lg bowel & removal of my ileum, v& small section of sm bowel. I have yet to find a gastro Dr that hasn't caused me a high price with their lack of, I don't even know how to put it. I'm without a Dr for 1 yr now. My crohne's is not well. Entyvio did NOT work, Dr doubled it! Danger to double it! She didn't care, nobody did. Caused additional problems for rest of my life. Dr put me on humira, worked but I had 4 bouts of severe pneumonia, double & pleurisy too. Then I got a first bout of congestive heart failure! I read humira tiny warnings, no Dr out of 5 will or has confirmed th fact that humira did this ALL problems melted away after I quit taking the humira myself! Not 1 Dr has ever confirmed the obvious even my PCP. I've been w/o Dr and any meds for about a year now. I've been thru maybe 4 drs. All they seem to care about is not upsetting big pharma, even at the expense of my life. Be weary. These biologics do things to our bodies, maybe DNA that pharma and drs are not open about. I'm up in the air now. Full of fear to have to save my own life.

@mjg229 Welcome to Mayo Clinic Connect! I’m glad you found this site and I’m sure our members will pop in with tips and suggestions.
Can you tell me how you found Mayo Connect?

I frequent the Mayo website often, wishing I could be see there. I have found every icky Dr for gastro possible. I for some reason, reading Mayo Newsletters have gained a hopeful trust in what I read about Mayo treatments. They seem so thorough. Thank you for asking.

@mjg229 Here are some other discussions about Crohn’s disease:
https://connect.mayoclinic.org/discussion/diagnosed-with-crohns-but-having-weird-symptoms/
https://connect.mayoclinic.org/discussion/questions-about-crohns-disease/
Hope they will be helpful!

I wanted to mention that I have an appointment with a rheumatologist next month. I've waited 3 months. My ANA returned elevated or however, I believe something new has joined my crohne's. I have a lot of pain in my wrists, hands, feet, ankles and it now seems to be in the meaty parts of arms and legs. I'm fretting over getting sub-par car and being given medication that pleases the docs. I was reading rheumatoid arthritis, MS, are 2 bad ones. I discount the lupus because of lack of facial rash. Maybe the ANA doesn't mean anything. But the pain is very real, keeps me from doing things, even around home. Any believer's? Prayers, please. Thank you, XO

I had the same type of inflammatory pain and it is real along with Crohns. Please keep searching for the right Dr. May need to see an arthritis Dr to get help.

You’ve got this. I’ve been diagnosed over 30 years and it’s difficult. I’ve been on so many drugs and now on Humira. Stress is always a problem for me. I feel better when my stress is controlled. Try reading Mind Your Gut, it should offer some good supportive things to consider.