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Does anyone suffer from Crohn's or colitis?

Autoimmune Diseases | Last Active: 2 hours ago | Replies (109)

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@mjg229

Hi! Im 64. Was dx'd about 15 yrs ago with crohne's. I was well past the average age of "normal" diagnosis. No matter had an emergency 3 way reaction, removing of a fistula from sm bowel to lg bowel & removal of my ileum, v& small section of sm bowel. I have yet to find a gastro Dr that hasn't caused me a high price with their lack of, I don't even know how to put it. I'm without a Dr for 1 yr now. My crohne's is not well. Entyvio did NOT work, Dr doubled it! Danger to double it! She didn't care, nobody did. Caused additional problems for rest of my life. Dr put me on humira, worked but I had 4 bouts of severe pneumonia, double & pleurisy too. Then I got a first bout of congestive heart failure! I read humira tiny warnings, no Dr out of 5 will or has confirmed th fact that humira did this ALL problems melted away after I quit taking the humira myself! Not 1 Dr has ever confirmed the obvious even my PCP. I've been w/o Dr and any meds for about a year now. I've been thru maybe 4 drs. All they seem to care about is not upsetting big pharma, even at the expense of my life. Be weary. These biologics do things to our bodies, maybe DNA that pharma and drs are not open about. I'm up in the air now. Full of fear to have to save my own life.

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Replies to "Hi! Im 64. Was dx'd about 15 yrs ago with crohne's. I was well past the..."

@mjg229 Welcome to Mayo Clinic Connect! I’m glad you found this site and I’m sure our members will pop in with tips and suggestions.
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