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Regional complex pain syndrome
Chronic Pain | Last Active: May 29 6:22am | Replies (21)Comment receiving replies
@reedvr2
I am sorry to hear about your suffering. I have severe lumbar spinal stenosis, DDD/spondylosis, and sciatica and have been delaying surgery on L2-S1 as long as possible with epidural injections to manage the severe pain that impacts walking, standing, sitting, etc.
Did they properly patch the CSF leak? Have they done MRI/MRN, EMGs, nerve conduction studies, ultrasound, etc. on your back and leg to look at how the surgery impacted or injured your spinal cord, peripheral nerve roots, blood vessels? It sounds like you have injured or pinched nerves/blood vessels. I have pain that radiates down my hips, buttocks, back of legs (especially my right leg) and down to my feet. The purple blue coloring of your leg sounds like an issue with blood flow. Have you had spinal injections to help you manage the pain? Do you take anything for pain (like Gabapentin)? Do you use any lidocaine pain patches (like Salonpas brand)? I had taken Duloxetine which can help some with nerve pain. I also take alpha Lipoic acid and Acetyl l carnitine supplements for nerve pain which has helped me some. Make sure to take care of your mental health as dealing with chronic pain can really impact quality of life.
Replies to "@reedvr2 I am sorry to hear about your suffering. I have severe lumbar spinal stenosis, DDD/spondylosis,..."
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As I know of the CF leak was done right. Had to stay in the hospital a couple extra days .I kept telling them that there was something wrong. The more I try to walk the worse I got it got to the point where I cannot even sit I had to lay on my side. I had to go into the hospital for pain control that was 4 days. I had to have more MRIs CTS done and then started doing injections . I've had to go to the hospital twice to make sure I don't have blood clots in my leg which everything is on my left side from my knee cap down it's purplish and blue.in the middle of that I went to two different surgeons and there's nothing surgically that could be done. I still feel that something is not right. Done a couple more injections got a little bit of relief from them.And tried the spinal cord stimulator trial got little bit of relief from that so we did not move forward. .then they wanted me to have a MRI done of my pelvis I did that .I went to a new pain management doctor and he went over it with me and said there was inflammation in that area he wanted to do trigger point injections done that just had a nerve block done I'm on a pain medication regimen as of now . And he said that he would like to try the stimulator in a different location. And yes this has mentally got to me I try to do my best try to push myself everyday.