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Azithromycin, Ethanbutol, & Rifampin Drug Therapy for MAC
MAC & Bronchiectasis | Last Active: Nov 3 10:53pm | Replies (126)Comment receiving replies
Hi Noname,
When you’re down to 78 pounds that’s a concerning situation. You should seriously consider having a consultation with Michelle MacDonald. She is the nutrition supervisor at NJH and also has a consulting business. I know many people who have gone to her and found it extremely helpful. If you are interested, I can give you her contact information.
Best,
Linda Esposito
Replies to "Hi Noname, When you’re down to 78 pounds that’s a concerning situation. You should seriously consider..."
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Linda-
Do you have any new, the latest, studies with BE/MAC patients being on Azithromycin and Ethambutol only, no Rifampin.
I am wanting to make my decision to take the two, but would like to read and know as much as I can....... what the latest findings, studies are with the drugs. The only information I found was from 2017 and 2016 and it could be totally different by now?? Those NIH studies weren't showing the success we all we like to hear with taking the two. Of course, there were some success stories in the studies.
I have heard about the medication Arikayce and wonder if I should do all I can to get into a study and start just with the Arikayce, if that is how they do it...just Arikayce.
I have read many posts here, and as we know, with all different results. Most were on the 3 medications whereas Tyler said "not putting you on Rifampin." I trust that she had a good reason why not to put me on Rifampin, I forgot to ask why not.
Hope you are doing well.
Thanks,
Barbara