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Epidural to Relieve Arachnoiditis Pain

Spine Health | Last Active: May 7 3:26pm | Replies (15)

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@labgirl

Hello,
Sorry for my delayed response to your comments.
I did decide to go forward with the epidural because I am so desperate for pain relief.
Unfortunately, it turned out to be an agonizing procedure for me. My doctor gave me
a sacral epidural that caused me to scream with incredible pain as the needle entered
my back. I begged him to stop the procedure, but he said he already had 60% of the injection complete and wanted to continue.
By the end of the injection, I was sobbing and shaking uncontrollably.
Long story short, after all that, it offered no relief whatsoever.
It was a very hard "lesson learned" and I will just need to continue on my search for relief that doesn't involve touching my spine in any way........no surgeries, no injections.
Thanks for responding to my question from back in January, though. Sadly, just a week after my injection, my husband, who suffered from Parkinson's had two falls at home and was very disoriented. He was admitted to the hospital and diagnosed additionally with dementia. He developed COVID and was then sent on to a SNF. After that, I had to have him stay in assisted living. He went downhill very quickly, falling almost every day for two months. He passed away in early April.
I'm struggling to recover from this trauma, but I know it will take a lot of time and prayer on my part.
Janet

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Replies to "Hello, Sorry for my delayed response to your comments. I did decide to go forward with..."

@labgirl I am sorry to hear about the loss of your husband. Having physical pain must make this so much harder. You may find our Loss & Grief group helpful as you would be communicating with other members going through similar circumstances.
Here is the link to the group.
https://connect.mayoclinic.org/group/loss-grief/

I am a cervical spine surgery patient and only had one spine injection which caused me a lot more pain and didn't help. I think I was allergic to something in the injection. It was the most painful experience in my life totally off the charts of what I previously thought was intense pain. I was also shaking uncontrollably and nearly passed out, but I managed to hold on with some deep breathing and imagery I chose to think about instead. I'm not doing another of those injections again. I don't have lumbar issues, but I can sympathize.

Jennifer