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@sheridanb

Thank you @stevm! He will be so happy to hear of your side effects disappearing. His comment when anyone asks how he's doing is... I'm hanging in there.... but it has been a challenge. It sounds good that after #12 next week that he may at some point be able to walk around without fear. He too passed out once after standing up and walking up the stairs. Luckily he was at the top landing before crashing. Could have been much worse and I know he/we think of that every time he stands. And they told him his BP is too low, so we have been going in for extra hydration often as he seems unable to drink enough. And yes, I've been doing all the driving for months now.
Thank you for your encouragement!
Do you mind me asking if your doctors have you on new drugs after you finished #12? Thanks.

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Replies to "Thank you @stevm! He will be so happy to hear of your side effects disappearing. His..."

Following round#12 I did six weeks (28 days) of chemo/radiation. 1500mg of oral Capecitabine on the days of radiation. Although there were some side effects it was nowhere near as bad as the Folfirinox regimen. Still dealt with dehydration issues to some extent but it was manageable. I used a product called Liquid IV (avaialble at Walgreens/CVS etc) which I found to be helpful. There are other similar products as well. I went to the gym regulary during chemo/radiation treatment so felt that it was crucial to stay hydrated. I should note that my treatment protocol was a bit different than the majority of patients as I had a distal pancreatectomy and splenectomy prior to the 12 rounds of folfirinox and chemo/radiation.

@sheridanb This likely doesn't apply, but just in case.... During a modified Folfirinox (Folfiri) regimen I had a few bouts of lightheadedness. I also was experiencing significant ongoing weight loss. I've had hypertension for many years, controlled by two medications (HCTZ and Losartan). I discontinued the HCTZ and continued the Losartan. The lightheadedness disappeared, my BPs are normal, and the hypertension remains under control.