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@beluga

I received radiation treatment for prostate cancer 9 months ago. 5 months after the end of the treatment I started to experience rectal bleeding. My family doctor had me take sucralfate enemas for 6 weeks with no improvement. Then we tried sucralfate supositories for 2 weeks with no improvement. Then 3 weeks without any treatment again with no improvement. Now waiting for an appointment with a gastrointestinal doctor. Any ideas anyone have with similar experiences for treatment or managing the bleeding would be greatly appreciated.

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Replies to "I received radiation treatment for prostate cancer 9 months ago. 5 months after the end of..."

@beluga
beluga, several years ago, I experienced bleeding from radiation exposure. I was told by several oncologists and my trusted gastroenterologist that there was nothing that would help and I should just get used to it. They were wrong.
It took me several years to find out about this procedure and months to find a practitioner. I can recommed Dr. Buxbaum at USC. You may find a practitioner closer to you, but it will be a struggle. Lots of places use radiofrequency with little success. You need someone with the Halo 90.
Radiofrequency with the Halo 90 penetrates with a low controlled frequency that has been microscopically proven to allow the regrowth of normal epithelia in the rectum. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8831406/#:~:text=RADIATION%20PROCTITIS%20AND%20ITS%20CLASSIFICATION,induced%20damage%20to%20the%20rectum.
The halo 90 is a wand with a tiny flat mesh (looks like a flyswatter) depth, frequency and duration are tightly controlled. Treated areas no longer bleed.
Copy this article and take it with you to the GI appointment. I don't expect he'll know about the procedure. Ask him for a rectoscopy to document the bleeding for insurance approval.
The procedure is done in hospital. A private office won't have this expensive equipment. The procedure itself only takes about 15 minutes, but you'll be there half a day. And they can only treat small areas at a time so you may have more than one session.
If you have any questions, I'm happy to answer.

If other remedies mentioned don’t work for you, and you have an official diagnosis of radiation-induced proctitis, look into hyperbaric oxygen therapy (HBOT): https://www.ncbi.nlm.nih.gov/books/NBK537343/

I tried HBOT and I think it works. The trouble is that it is two hours a session. Most with significant radiation proctopathy need 50 to 90 sessions. There is a lovely treatment center in Encinitas, Ca. It's on the second floor. Those ones in the basement are a bit depressing.

Hi Beluga,
Approximately a year post-completion of my 20 sessions of Tomotherapy, I experienced an alarming episode: a sudden onset of bloody discharge from the rectum, accompanied by copious amounts of mucus, even containing skin-like substances. I consulted my physician the following day, and I underwent an examination which confirmed radiation-induced proctitis. Treatment involved a self-administered enema (Hydrocortisone Acetate Foam 10% w/w), alleviating the symptoms within a few days, and halting the bleeding. Though the bleeding ceased around four months ago, residual mucous discharge persists post-defecation. Despite this, it doesn't significantly impact my well-being, and I continue to lead a content life.

In addition to helpful replies you received, you might review these 2 discussions:

- How to treat rectal bleeding? Started after prostate cancer radiation
https://connect.mayoclinic.org/discussion/how-to-treat-rectal-bleeding-which-started-six-months-after-prostate-r/
- Looking for tips on managing Radiation-induced proctitis
https://connect.mayoclinic.org/discussion/radiation-induced-proctitis/