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@stevm

Sorry to hear he’s going through this. I also experienced lots of lightheadedness and what I described as vertigo while on this regimen. I had to be very diligent about keeping hydrated. I passed out once after standing up too quickly after round 5 and ended up in the ER. After 8 hours and a battery of tests it was determined that I was dehydrated and had low BP. I had been on anti hypertensive meds for a number of years. The doctor recommended reduction in BP meds and extra IV’s in the days following infusions. This helped but it wasn’t until I finished my 12th round before I felt better. They could never really pinpoint the vertigo issue other than to say that there are many side effects and everyone reacts differently. I couldn’t drive on the highway for months as the vertigo was to severe. Happy to report that a month or so after treatment it disappeared. Only lingering side effect is neuropathy in hands and feet. Best of luck on this challenging journey. Tell your husband to hang tough.

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Replies to "Sorry to hear he’s going through this. I also experienced lots of lightheadedness and what I..."

Thank you @stevm! He will be so happy to hear of your side effects disappearing. His comment when anyone asks how he's doing is... I'm hanging in there.... but it has been a challenge. It sounds good that after #12 next week that he may at some point be able to walk around without fear. He too passed out once after standing up and walking up the stairs. Luckily he was at the top landing before crashing. Could have been much worse and I know he/we think of that every time he stands. And they told him his BP is too low, so we have been going in for extra hydration often as he seems unable to drink enough. And yes, I've been doing all the driving for months now.
Thank you for your encouragement!
Do you mind me asking if your doctors have you on new drugs after you finished #12? Thanks.