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Husband with AML facing a stem cell transplant
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Sep 7 11:43pm | Replies (117)Comment receiving replies
Hi Lori,
Your words and encouragement are so soothing and exactly what we need now. My husband is so grateful to you for all your wisdom and positive attitude! I talk about you with him like you are one of our friends. 😊 Thank you for confirming the timing of your last chemo cycle before transplant. That’s so reassuring!
Yes, it can all be so overwhelming for me sometimes. I am grateful that things are aligning for the transplant, but there are so many details to attend to. I am anxious about a lot of things, mostly a good outcome for my husband. I have a deep faith and need to keep my heart focused on that. I so appreciate hearing things will get better.
We have a full day of appointments and a couple of tests with the stem cell team later this week. Today was the last day of oral chemo on this cycle! Yahoo! Here’s hoping we see his counts start to climb and his faitigue start to wane a bit so he can enjoy some activities over the next few weeks. Another biopsy is scheduled next week. Praying for best results possible.
I just signed a lease for an apartment located a half mile away from the hospital so I can walk back and forth instead of driving 30 miles each way in notorious traffic. Our dog is going to stay with a friend for the duration. I’ll miss her very much.
We have another amazing blessing coming our way as well in June. Our daughter is due with her second child and is scheduled to be induced on my husband’s actual birthday at the end of June. By that time, it will be his second birthday. 😊 The timing is extraordinary. So in the midst of all this hard stuff, we look forward to the birth of another grandson.
Lori, I believe your mentoring of all of us seeking refuge and hope in the dark days of diagnosis, alarming prognosis, and scary treatments, comes from a divine place. Thank you for your generous spirit, steady guidance, and sense of humor. Our burdens are a little lighter because of you.
Mary
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Good morning, Mary. Well, darn it, your message made me all misty eyed. Thank you muchly for the gracious and kind words. It’s my pleasure to be able to help you and your husband over this rough patch in the road. Quite honestly there are moments, like this one, where I feel maybe I was spared to be a guide for others through their cancer odyssey. Never in a million years would I think that having cancer would have such a silver lining. But along my journey I’ve met so many amazing people, some whom have become dear friends, and had experiences I would never imagine because of what I’ve gone through and overcome. It’s in my nature to help and give back so being associated with Connect has been the icing on that cake.
I know this entire experience can feel overwhelming for both of you. But from what I’m reading, you two are a dynamic duo and quite the team. You’re doing everything thoughtfully and systematically. The details will fall into place. Brilliant move leasing the apartment that’s nearby. That will reduce your anxiety hugely. Do you need any suggestions for what to pack? I recently wrote a reply to another member who will be having a SCT later this summer. Maybe take a look at this post: https://connect.mayoclinic.org/comment/1059221/
You won’t need the segment about lodging. But there are 2 links for caregivers. Pretty sure I posted those for you before but now that you’re getting closer, it will be a refresher. Also, there’s a quick list of things I found helpful to take to the apartment where we stayed for 3.5 months.
I’m sorry about your dog not being able to come to the apartment with you. Wonderful that you have a friend who can take care of your fur baby! One less stressor for you!
Aww, and having a new grandbaby in the midst of all of this medical drama will be such a special gift! All these ‘birthdays’ at one time! This will be a memorable time of the year for decades to come.
You’ve got this! Trust the process, trust the team and let them do the worrying for you both. Just get through one day at a time and the worst will be past soon enough.
Prayers for a clean biopsy next week! Hugs, Lori.