List of questions for the MD - what do you wish you had asked?
I have an appt with an endocrinologist (my 3rd) on Wednesday. The first two docs were not very interested and the visits were perfunctory. The one I am seeing this week was actually recommended through this group (thanks @mayblin). I am compiling a list of questions so I am as prepared as I can be and I'd love any suggestions.
A little bit of background info: Lumbar spine density is in the osteopenic range, but my L hip is -3.5. I have taken 3 falls in the last year while prepping for hiking and cycling adventures and also fainted in March (virus) and fell on a tile floor - staples in my head, but no fractures.
My mom had OP, but she had lupus/lymphoma and was on prednisone for years and also endured chemotherapy. She didn't ever exercise. The docs put her on Fosamax (20 years ago maybe) and she had a spontaneous fracture of her femur (related to the meds? I don't know.)
My DXA scan was on my left side only and included L1-4, the femur neck and hip. I have asked for the images, but they have not been forthcoming. I'll go in tomorrow and see if I can get a copy.
My insurance has approved Tymlos and Teriparatide ($$$$$, but I'll get it if that's what is recommended).
If you had an appt with a new doctor, what are the things you wish you had asked and didn't?
Thanks so much.
Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.
@mayblin, No, I did ask and he was non plussed. He said it could be structural from birth. Other than that, he had no comment and was not concerned. I'll follow up - it's on my list of follow up questions.
@ripley here they are
(and all comments are welcome!)
@ripley, I shared my numbers under a different person - sorry.
I think you have me mixed up (so maybe you didn't want MY numbers) because I have not ever fractured.
@babs10 maybe I missed, is it a hologic or GE Lunar?
Guess this is your report written part. Mine has a total of 8 pages with graphs
He referenced the Alex Azar story in a you tube video, so that was one hint. I knew he was around 80, and I had heard his philosophy about medications, which sounded basically like what you were told….so…..I don’t think there are too many 80 year old doctors who specialize in osteoporosis anyway!
@mayblin, Count your lucky stars and I'm so envious of your detailed report!!! That is mine in total. I asked Dr. Miller why it was so scant on information and he said that's how some of them are. They gave me a disk at the imaging center, but it wouldn't open and they didn't offer any written reports or images. UGH. I spent some time calling hologic centers today, also looking for TBS software and so far, nothing. Needless to say I don't plan to go back to the same place for my next DXA (which also concerns me b/c we are supposed to go to the same place). I thought all DXA centers, machines and techs were fundamentally the same when I started this process so it didn't occur to me to do anything differently -- I went to the center where I get my mammogram. This process has been frustrating.
@glojo, good memory and dead giveaways!
would yoube kind enough to list the bone marker tests please? Thank you
@babs10 that was a really useful post detailing your doctors visit. Great example of the care those of us with bone loss need to get. Each of us can contrast that with our dr visits.
I've listened to a couple of interviews with Dr Paul Miller but your report really adds to the picture of what he's doing with patients. Thank you
mayblin,
I saw from a previous comment that you had recommended or other had specific individuals that you or other had found knowledgeable. Would you please share that with me please?