@ladyq Welcome to Mayo Clinic Connect! It's not easy to be dealing with lymphedema, as you are finding out.

Here is what Mayo Clinic has to say about lymphedema: https://www.mayoclinic.org/diseases-conditions/lymphedema/symptoms-causes/syc-20374682 As you can see, there are different causes for it.

I hope you are able to get a different doctor and get the results you are looking for. Will you come back and let us know, please?
Ginger