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← Return to Starting Arikayce - nervous
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MAC & Bronchiectasis | Last Active: May 7 9:56am | Replies (97)
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Formergardner,
Do you do nebulized amikacin and still had hearing loss? I'm sorry to hear this. I thought the hearing loss was more with injections, but I also know other antibiotics can cause hearing loss.
I am having my hearing checked frequently while on the amikacin in hopes that they can detect hearing loss if it starts occurring. But I know it's a risk.
Best to you,
Mokie
Replies to "Formergardner, Do you do nebulized amikacin and still had hearing loss? I'm sorry to hear this...."
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My hearing loss actually began after 5 months on the Azithromycin. Then it worsened when I began the Arikayce.
I did read somewhere that sometimes susceptibility to hearing loss from antibiotics can be genetic. One of those things that needs to be screened for.
My hearing loss is not profound. I can easily hear and understand speech. My issues come more now with television and also radio in the car with background noise from the road.
I was more concerned with lung health and surviving this disease than with needing hearing aides, to tell the truth. They are comfortable, and I don’t need them to function in life. I was advised that cognition can be affected if hearing loss is not addressed and that tinnitus is the body’s way of compensating for sounds not heard.
Many drugs can affect the tiny hairs in the ears. The MAC drugs are not the only ones.