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Rare Cancer: Gynecologic Extramammary Paget's Disease
Gynecologic Cancers | Last Active: 1 day ago | Replies (49)Comment receiving replies
Welcome, @nomikins. Are you referring to this Mayo Clinic trial?
- Gynecologic Extramammary Paget's Disease https://www.mayo.edu/research/clinical-trials/cls-20387127
"In addition to evaluating treatment outcomes, tissue samples and swabs will be collected as part of this study to allow physicians to better understand Extramammary Paget's Disease (EMPD). The researchers also want to learn more about the microorganisms (microbiome) that live on or near the areas of skin affected by EMPD, in order to better understand this condition."
For more information, you can contact the study coordinator Maureen Lemens C.C.R.C. at (507) 293-1487.
Nomikins, what treatment options are available to you? How are you doing?
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Sorry, Colleen, just seeing this now. Still learning how to navigate this platform. Thank you for your welcome and questions. Yes, that’s the trial I was referring to, but coming out to the Mayo Clinic right now is not an option.
Right now I am looking at doing Mohs surgery where I live. I am in the Bay Area and the team consists of Stanford doctors. I’m seeing a GYN and a Derm. The Derm is a specialist in Mohs surgery and the GYN appears to be very familiar with EMPD. So I feel I’m in good hands. But, I am hoping to find info. on less invasive treatments, like Aldara. They will review my options with me this Fri but I already know they believe the Mohs surgery is the best option for me. I’ve haven’t had surgery since I was much younger, so this is a big deal for me and I’m pretty freaked out. But keeping it together for the sake of my daughter.