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I have LCIS, anyone else?

Breast Cancer | Last Active: Aug 12 12:20pm | Replies (62)

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@colleenyoung

@carolyn224, sometimes having choices can be so hard. Asking questions is your best plan forward. Luckily others before you have debated the same question about lumpectomy vs mastectomy. See all the discussions related to this decision.
https://connect.mayoclinic.org/group/breast-cancer/?search=mastectomy%20or%20lumpectomy&index=discussions
Note that not all of these discussions refer to a diagnosis of LCIS. So, you'll want to ask your oncologist questions. For example:
- What are the pros and cons of lumpectomy vs mastectomy?
- If I get a mastectomy, will I still have to have preventive cancer medicine?
- What will follow up be like for either decision?
- What are my choices for reconstruction?

Keep in mind that follow up is likely still required with a mastectomy to make sure that cancer does not return. You will continue to have imaging studies of the other breast as well.

Also, make sure you do what is comfortable for you. I know it's overwhelming. How are you doing with all this?

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Replies to "@carolyn224, sometimes having choices can be so hard. Asking questions is your best plan forward. Luckily..."

It is extraordinarily overwhelming to have to make this type of decision. I wish doctors would just tell me what to do and I will do it. However, I also had this decision to make. I talked to four different doctors, a social worker, two genetic counselors (fortunately I do not have a genetic tendency that would increase my risk of breast cancer, but I still needed to find out). I also talked to two people who had mastectomies, to find out what their experience had been, as well as two friends who had had lumpectomies plus radiation therapy. I felt totally inadequate to make a decision of this nature, and it made me mad. Doctors have years of training. Why can't they just tell us what we need to do? Since three out of four of the doctors I talked to told me that getting a lumpectomy plus radiation wasn't a bad decision, and that a mastectomy was probably overkill in my situation (stage 1 lobular breast cancer in association with pleomorphic LCIS), I decided on the lumpectomy. I needed two lumpectomies to get a clear margin. So far I am happy with my choice. I can always go back and get a mastectomy if that should become necessary. It's true that each person has to decide for herself if the outcomes are "equal" - that is, the risk of recurrence is statistically the same, but boy is it difficult! I am rooting for you.