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What's next after folfirinox?

Pancreatic Cancer | Last Active: May 6 10:28am | Replies (8)

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@sheridanb

Thanks. We met with a nurse practitioner this last time. The oncologist has mentioned an oral chemo, or the "pump" without the day of chemo, or a different drug that may be easier to tolerate. But hasn't said anything definite. Wants to see results from petscan at the end of this month.
We're just hoping whatever it is allows my husband (not my dad) to have some energy to do anything other than sit on the couch. We've started going in for extra hydration and anti nausea stuff every few days and that has helped. Chemo #7 and #8 were the worst, but I think it is the added hydration that is helping. But he just has no energy to do anything. And if I'm not here to put something to eat/drink in his hands.. I think he would do without rather than stand up and walk to the kitchen. Also he is light headed a lot, so of course that makes him less likely to want to stand up. It's so hard on him. One more treatment, then we're curious what will come next.
He just started creon yesterday so I'm curious to see if that will make a difference in anything.

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Replies to "Thanks. We met with a nurse practitioner this last time. The oncologist has mentioned an oral..."

I am stage 2b PDAC on the tail of my pancreas. Had Pancreatectomy/splenectomy in April 2023 followed by 12 infusions of folfirinox. The things that helped me most with fatigue was Olanzapine and adderall. I also had hydration after every infusion. I hope this is helpful.

@sheridanb, my apologies. I saw Dan and read dad.