Anyone else have a Redundant / Tortuous Colon?

Posted by onaquest @onaquest, Nov 7, 2018

Hello. Anyone else out there that has a redundant/ tortured colon? I was diagnosed with this a few years ago. I’m usually ok, but if I get constipated, I get sick for a week or two. Last year my gastroenterologist referred me to a surgeon for urgent surgery to remove some of my colon. The surgeon I ended up seeing (not on the recommended list by my gastro doc due to others not available for a long time) said he believed I could live with the redundant colon if I followed a low FODMAP diet. I tried the diet religiously, scientifically (I’m a scientist), and I found it’s not the food I eat that causes these bouts of constipation. The only item I’ve found that might cause the bouts is coffee every day. An occasional coffee seems fine. What has helped me stay regular in a big way is Benefiber (or any pure wheat dextrose generic) three times per day. Lots of fluid.

My gastro doc was upset with the surgeon and said I’d regret not having the surgery. He fears I will end up in an emergency situation. I have searched the Mayo site and don’t find anything about redundant/ tortured colon. Are any Mayo docs doing research or treat this condition? Anyone else suffer from this too?
Thank you! -Jayne

Interested in more discussions like this? Go to the Digestive Health Support Group.

I was diagnosed a couple of years ago when having my colonoscopy. I have been following the Low Fodmap Diet and it has helped tremendously! It is the diet that people with IBS follow. Fiber does not help and can sometimes bring on my symptoms. I exercise and follow this diet and drink lots of water. My only question is what can they do the next time I need a colonoscopy?? I took a stool softener and drink a whole gallon of prep and it took hours for me to eliminate it. Luckily the surgeon could still do the procedure and that is when I found out about my redundant colon.

REPLY
Profile picture for md123 @md123

I suffer from a redundant colon. I am a 60 y/o female and have started taking Mira Lax daily since September 22. Since I started doing this I am having BM's every morning but I know how severe heartburn. I had intermittent heartburn for years but nothing that required attention. I have to tie this to the ML. Does anyone else suffer from this? I am also in excellent health, not one prescription. I normally get 16 hours of exercise a week and have never been overweight. I have gained 10 lbs since I started the ML and I can not lose it. Is it the water retention that is causing this? If so, is there any other way to have a BM without the ML. I eat correctly and drink plenty of fluids.

Jump to this post

This is a great thread. A lot of good information here. I also have found that taking milk of mag or miralax causes heartburn. They both work for me but I have gut pain and heartburn after taking either one everyday. I am not sure what to do at this point.

REPLY
Profile picture for superel @superel

This is a great thread. A lot of good information here. I also have found that taking milk of mag or miralax causes heartburn. They both work for me but I have gut pain and heartburn after taking either one everyday. I am not sure what to do at this point.

Jump to this post

I finally bit the bullet and had an endoscopy performed. Revealed a hiatal hernia. Now I take Pantoprazole and that is the only med that has worked for me for the heartburn. I started taking a good Magnesium supplement at night which helps with the constipation.

REPLY
Profile picture for md123 @md123

I finally bit the bullet and had an endoscopy performed. Revealed a hiatal hernia. Now I take Pantoprazole and that is the only med that has worked for me for the heartburn. I started taking a good Magnesium supplement at night which helps with the constipation.

Jump to this post

I appreciate the input. The acid stomach started after taking miralax everyday. I was taking it for several weeks and so I stopped miralax and switched to milk of magnesia 15 ml every night. Eventually acid stomach got worse. Never had an a consistent acid stomach problem before this. Just once every once and awhile after eating spicy food. I am now going off daily milk of mag and miralax to see if the acid stomach problem goes away. I am now using ducolax SSoftener and soup and salad diet with soluble fiber supplements. Praying this works. It looks like I will just be able to use M of m and miralax every so often.

REPLY
Profile picture for superel @superel

I appreciate the input. The acid stomach started after taking miralax everyday. I was taking it for several weeks and so I stopped miralax and switched to milk of magnesia 15 ml every night. Eventually acid stomach got worse. Never had an a consistent acid stomach problem before this. Just once every once and awhile after eating spicy food. I am now going off daily milk of mag and miralax to see if the acid stomach problem goes away. I am now using ducolax SSoftener and soup and salad diet with soluble fiber supplements. Praying this works. It looks like I will just be able to use M of m and miralax every so often.

Jump to this post

I hope that works for you. I will never take Miralax or MofM again. Granted, I have the hernia, but it was never as bad until I started the Miralax. If I eat a lot of fiber, I so easily get backed up but I have the redundant colon, not sure if you do or not. I eat a lot of soup, and stay hydrated but stay away from anything bulky.

REPLY
Profile picture for md123 @md123

I suffer from a redundant colon. I am a 60 y/o female and have started taking Mira Lax daily since September 22. Since I started doing this I am having BM's every morning but I know how severe heartburn. I had intermittent heartburn for years but nothing that required attention. I have to tie this to the ML. Does anyone else suffer from this? I am also in excellent health, not one prescription. I normally get 16 hours of exercise a week and have never been overweight. I have gained 10 lbs since I started the ML and I can not lose it. Is it the water retention that is causing this? If so, is there any other way to have a BM without the ML. I eat correctly and drink plenty of fluids.

Jump to this post

No one has said that I have a long or redundant colon. Yes, I am switching to soup, ten cups of water, and cautiously adding a little fiber. I am going to do my best to stay away from a bulky diet. It is hard to do that during the holidays. My wife is a really good cook as well. There is surprisingly little to no information about miralax and M of Mag causing acid stomach. Every once in a while, I run across someone who mentions they have had the same problem. I hope your diet works for you.

REPLY
Profile picture for md123 @md123

I suffer from a redundant colon. I am a 60 y/o female and have started taking Mira Lax daily since September 22. Since I started doing this I am having BM's every morning but I know how severe heartburn. I had intermittent heartburn for years but nothing that required attention. I have to tie this to the ML. Does anyone else suffer from this? I am also in excellent health, not one prescription. I normally get 16 hours of exercise a week and have never been overweight. I have gained 10 lbs since I started the ML and I can not lose it. Is it the water retention that is causing this? If so, is there any other way to have a BM without the ML. I eat correctly and drink plenty of fluids.

Jump to this post

Kiwis can help with regular bowel movements.

REPLY
Profile picture for dustycat52 @dustycat52

Kiwis can help with regular bowel movements.

Jump to this post

Thanks will give it a try.

REPLY

I am in my 40s and recently had my first colonoscopy and was surprised to learn I have a redundant colon! I used to live in NYC and walked so much, I barely noticed. But I moved to a driving city and was noticing bowel movements that were extremely large that were causing tearing and bleeding. Doctors were telling me to eat more fiber. But then after the diagnosis I was told to eat a low fiber diet, which lacked almost any nutrients.

I am still trying to get a hold of how to eat a balanced diet. I've been reading up on gut health and adding kimchi and probiotics to my diet. Trying to slow down when I eat and drink a lot of water. (I like the idea of setting a water reminder)

I've decided to eat a bit more intuitively and pay more attention to how different foods impact me. It seems it takes about 6 days for food to make it through my colon. I stay away from cruciferous veggies and peppers.

Taking miralax has been a big help. I have to experiment with how often, because too much and stool gets runny. I actually found that eating grape nuts in the AM keeps me regular.

I have also been trying belly dancing, massage, sit-ups and walking after meals. But sometimes I don't hear or anything moving around in there!

So this is definitely a new journey. But I'm taking it slow. I've been confused by advice to eat low fiber vs. high fiber. Somewhere inbetween works.

Hopefully I will be able to meet with a nutritionist who specializes in this one day. If anyone knows of anyone to follow on social media let me know.

REPLY

I don’t have a redundant colon, but I do have a lazy colon. It takes forever to move things along. Long story short, I can’t eat much fiber, as it really really clogs me up. So, high protein, no refined carbs and lots of water. Oh, and exercise, I walk everyday. Good luck 🙂

REPLY
Please sign in or register to post a reply.