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Does anyone have this type of off balance feeling?

Hearing Loss | Last Active: May 21 6:59pm | Replies (31)

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@sylvermoon8

I thought it might be my hearing aids but I tried wearing my old ones and I get it when wearing them too. I also thought it was from the RSV vaccine. Then I realized I wrote in my diary about my first episode and it was the day before the vaccine. That day it was a brief episode after being out and about all day feeling fine. Usually it doesn't bother me while I am sitting but today I can feel it sitting here typing. Loud music annoys me but I cannot say loud sounds bring this on. I do get a slight weakness which I think got me the neurological referral. I actually thought maybe I was over it this week because I had several days of feeling just fine but then yesterday it was back pretty much all day and now after being up for a while I feel it back again. I am wondering what the 2 hours of audiology testing will be like this week, no eating for 4 hours prior.
We shall see. Along with hearing loss I have tinnitus 24/7 and extreme pain when flying but that sums up my ear issues at this point….
Thank you for your response!

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Replies to "I thought it might be my hearing aids but I tried wearing my old ones and..."

I get the weakness as well. I don't really pursue this anymore. I have gone to top doctors and clinics with no answers. I think it is related to tinnitus and may be coming from the brain, but won't show up on imaging.

Do you wear hearing aids outside the ear, like the ones that hook n the ear? Do they make noise (my mother's had that loud high pitched squeal and that would send me into a state of imbalance for sure.)

Have you considered a balance center? There are exercises we can do. I suggest the most helpful thing for me was a PT who specializes in vertigo. They can eliminate BPPV, inner ear, and decide if it is most likely brain-based.

The audiologist should also discuss the best hearing aid for you.