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2 year struggle to get off prednisone still hard to get from 3 to 2mg

Polymyalgia Rheumatica (PMR) | Last Active: May 15 9:20am | Replies (39)
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@dadcue

Hydrocortisone was the suggestion I received when I got to 3 mg. It was just a suggestion and my endocrinologist said it would be okay to stay on prednisone if I wished.

I want to commend you for persevering. It was extremely difficult for me at those lower doses. I was so tempted to increase my prednisone dose when I was encouraged to do so. My endocrinologist supported me and said I could increase my dose if I 'felt the need.' She wanted to know about it preferably before I increased but she didn't require that I notify her first.

I hope you are getting the support you need. I had the advantage of being on an alternative medication that wasn't suppressing my adrenal function. That allowed me to taper off prednisone more easily but it was still extremely difficult.

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Replies to "Hydrocortisone was the suggestion I received when I got to 3 mg. It was just a..."
victoriab | @victoriab | May 5 6:05am

Thank you for your kind reply, I have coped quite well going from 3 to 2 mg so decided to just persevere hard to believe it is 2 years since I started it, I work in mental health and it was interesting that I saw a handful of patients over that time who were on prednisone for different reasons and struggling and because of my experience I was able to give them some support I otherwise wouldn't have been able to, I have been surprised by the lack of information about side effects and withdrawal symptoms and Mayo connect has been helpful in knowing that my experience isn't unusual. Victoria B

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bunnybear | @bunnybear | May 7 7:38am

Are you talking about hydrocortisone cream?

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