Connect
← Return to 2 year struggle to get off prednisone still hard to get from 3 to 2mg
Discussion
2 year struggle to get off prednisone still hard to get from 3 to 2mg
Polymyalgia Rheumatica (PMR) | Last Active: May 15 9:20am | Replies (39)Comment receiving replies
Hydrocortisone was the suggestion I received when I got to 3 mg. It was just a suggestion and my endocrinologist said it would be okay to stay on prednisone if I wished.
I want to commend you for persevering. It was extremely difficult for me at those lower doses. I was so tempted to increase my prednisone dose when I was encouraged to do so. My endocrinologist supported me and said I could increase my dose if I 'felt the need.' She wanted to know about it preferably before I increased but she didn't require that I notify her first.
I hope you are getting the support you need. I had the advantage of being on an alternative medication that wasn't suppressing my adrenal function. That allowed me to taper off prednisone more easily but it was still extremely difficult.
Replies to "Hydrocortisone was the suggestion I received when I got to 3 mg. It was just a..."
Are you talking about hydrocortisone cream?
Connect
Thank you for your kind reply, I have coped quite well going from 3 to 2 mg so decided to just persevere hard to believe it is 2 years since I started it, I work in mental health and it was interesting that I saw a handful of patients over that time who were on prednisone for different reasons and struggling and because of my experience I was able to give them some support I otherwise wouldn't have been able to, I have been surprised by the lack of information about side effects and withdrawal symptoms and Mayo connect has been helpful in knowing that my experience isn't unusual. Victoria B