1. < Neuroendocrine Tumors (NETs)

Describe your recovery from lung NET surgery

Posted by emilyfaith @emilyfaith, May 2 5:12am

77, female, diagnosed withNET carcinoid tumors in LLlung and left lymph nodes. No other organs lighting up on scans, of which there were many. No symptoms, and otherwise in good health. Tumor board recommends surgery removal of entire lower left lobe. Please describe your surgery experience.

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emilyfaith | @emilyfaith | May 4 10:14pm
In reply to @gig666 "EmilyFaith, l can hear your fear in your words. My question is do you have a..." + (show)
@gig666

EmilyFaith, l can hear your fear in your words. My question is do you have a Team of NET. Specialist that can help you through your decision? I know both my lungs have baby Nets. right side slowly getting larger. I have gotten independent, who saying the same thing, at 74, taking a love out will slow the progression down. I have had the Roboic arm for two other procedures and l trust them over a human mind and hand. I didn't count on the surgeon reading the pathology report wrong. I would want the Robot to read it. You will heal, l will send you blessings for strength to make your decision.

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Tomorrow I will begin process to get a second opinion from a NET specialist.
I thank you for your concern and blessings. Emily

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emilyfaith | @emilyfaith | May 4 10:19pm
In reply to @shosh3700 "In 2019 it was accidentally discovered that I had a lesion on the lower right lobe..." + (show)
@shosh3700

In 2019 it was accidentally discovered that I had a lesion on the lower right lobe of my lung. We watched it, and, in 2024, it showed growth and lighting up on PET scan. I will be seeing Dr Andrew Brownlee at Cedars Sinai at the end of May for a consult and set a surgery date. The lesion is now 2.1 cm by 1.9 cm. I've decided to have it removed rather to continue to "wait and see" and subject myself to more observations tests and radiation over the next few years. I'd also rather have the lesion removed while I'm still young @ 66 yrs - HA!! and while my heart is still working as it should. I've been a bit nervous wondering about what post-op would look like so thank you for describing it, now I know what to expect. Hoping this also is a "one and done".

Wishing everyone good health for the remaining years. xo

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Shosh, you are in my prayers. Please keep me updated.
Emily

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1 reply
shosh3700 | @shosh3700 | May 5 1:28pm
In reply to @emilyfaith "Shosh, you are in my prayers. Please keep me updated. Emily" + (show)
@emilyfaith

Shosh, you are in my prayers. Please keep me updated.
Emily

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Emilyfaith, yes, will keep you updated, and, you keep us updated as well. I will say prayers on your behalf as well. From our lips to GOD's ears.

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shosh3700 | @shosh3700 | May 5 1:29pm
In reply to @gig666 "EmilyFaith, l can hear your fear in your words. My question is do you have a..." + (show)
@gig666

EmilyFaith, l can hear your fear in your words. My question is do you have a Team of NET. Specialist that can help you through your decision? I know both my lungs have baby Nets. right side slowly getting larger. I have gotten independent, who saying the same thing, at 74, taking a love out will slow the progression down. I have had the Roboic arm for two other procedures and l trust them over a human mind and hand. I didn't count on the surgeon reading the pathology report wrong. I would want the Robot to read it. You will heal, l will send you blessings for strength to make your decision.

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I like the idea of robotics as well gig.

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ce1b | @ce1b | May 6 5:57pm

My prayers for you will for a successful operation with a speedy recovery.

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shosh3700 | @shosh3700 | May 11 10:21pm

Lately, I have started coughing out of the blue for no reason. Has anyone else with NETS lung cancer experienced this?

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3 replies
emilyfaith | @emilyfaith | May 12 2:50pm
In reply to @shosh3700 "Lately, I have started coughing out of the blue for no reason. Has anyone else with..." + (show)
@shosh3700

Lately, I have started coughing out of the blue for no reason. Has anyone else with NETS lung cancer experienced this?

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shosh,
Sorry to hear about the coughing. I wish I could make it stop!

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1 reply
shosh3700 | @shosh3700 | May 12 10:27pm
In reply to @emilyfaith "shosh, Sorry to hear about the coughing. I wish I could make it stop!" + (show)
@emilyfaith

shosh,
Sorry to hear about the coughing. I wish I could make it stop!

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thank you, dear lady 🙂

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sandip | @sandip | May 13 8:07am
In reply to @shosh3700 "Lately, I have started coughing out of the blue for no reason. Has anyone else with..." + (show)
@shosh3700

Lately, I have started coughing out of the blue for no reason. Has anyone else with NETS lung cancer experienced this?

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I had left lower lobe removed had bad coughing to point of fracturing a lung cough lasted 4 months now just occasionally Get well soon

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1 reply
shosh3700 | @shosh3700 | May 13 10:35pm
In reply to @sandip "I had left lower lobe removed had bad coughing to point of fracturing a lung cough..." + (show)
@sandip

I had left lower lobe removed had bad coughing to point of fracturing a lung cough lasted 4 months now just occasionally Get well soon

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so very glad to hear that your cough is just occasional now. My goodness, fratured a lung or rib? Must have been extremely painful

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