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@bayviewgal

Well, Tom is still not sleeping regularly. At his last dr appt his neurologist switched his donepezil from bedtime to morning because she said it could act as a stimulator, but i don't see much of a difference. But there have been some behavior differences and i think he may be starting to develop or developed delirium. I'm looking back on dr. notes about this AND some internet research and he showing signs. So Ive got an email into her to get her take on it and set up another appointment. Maybe we need to switch meds again or add to some or delete some? I don't know, but i don't like this part cuz it's kinda scary.. scarier than the diagnosis, if you can believe that. And i'm still not sleeping,,,,uggghh 🙁
Hugs and prayers to all!

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Replies to "Well, Tom is still not sleeping regularly. At his last dr appt his neurologist switched his..."

Hi bayviewgirl,
I am sorry to hear your Tom is having problems with his meds. I was also afraid to have Will stop taking one of his two anxiety pills because of what it might do to him, but he was miserable and depressed and so was I. After going to 3 of his doctors and getting no answer, I asked the cardiologist if the sleepiness could be caused by one of the meds, and he agreed, but again no answer. I found Will was taking 2 anxiety pills, so I asked Will if he would start taking one pill every other day, and then stop. He began to feel like himself again and it is now going on 3 weeks and he is doing very well. I notified his doctors that Will stopped taking the anxiety med and that he was feeling much better. If this med had not helped, I would have asked the doctors again to help find the meds causing the sleepiness because it really was so painful for me see him so unhappy and giving up his quality of life. It is scary to change meds, and maybe the dosage could be changed. I would encourage you to keep asking Tom’s doctors to find an answer because I do believe it is in the meds.
Please let me know what you find out.
God’s blessings to both of you.