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Getting anti seizure medication right

Brain Tumor | Last Active: May 5 7:44pm | Replies (3)

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@jakedduck1

@poonarnar
What type seizures is your mom having and how often. What medication is she taking and what dose?
The tiredness and aphasia are likely to continue. They sometimes go away in a few week or months. Another way to hopefully decrease side effects is to start on low doses and increase slowly. Sometimes extended release drugs cause fewer side effects and in my opinion and some neurologists also believe that they are more effective.
Stanford University in Calif. did studies recommending to always use the same manufacturer whenever you have your drugs refilled.
Do not be embarrassed or ashamed that you have seizures. Continue to socialize with people. There are some people who never go out of their house because they are afraid to have anyone see them have a seizure.
It's not important that you had a seizure and what others might think, what's most important is what you think of yourself and knowing that you accept yourself and your epilepsy. Epilepsy is what it is and you can't change it so just go with it.
You said she has lost confidence in being around people even people she knows. DONT ALLOW THAT TO HAPPEN.
Stress, anxiety and depression are very common in epilepsy patients but it only makes things worse. After almost 60 years of seizures nothing bothers me and hasn't for a long time. I had a hard time the first couple of years, but that's because my seizures became so much more frequent and severe. I had a Nervous breakdown. I was having seizures on a daily basis sometimes 12 a day I had tonic clonic seizures mostly. I had a very dangerous type of Seizure called convulsive status epilepticus and had to be put into an induced coma and my first coma was eight months long. None of this is your fault and don't blame yourself. I had frequent seizures usually daily and none of the medicines did any good for 45 years. Then at age 59 they stopped. I had my last cluster 5 years ago because I was busy with my mom and forgot my medicine.
Medication adjustments can take may years.
Blessings,
Jake
PS…Hopefully Chris @santosha will come along and tell you how she decreased her seizures using alternative methods.

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Replies to "@poonarnar What type seizures is your mom having and how often. What medication is she taking..."

There are so many types of seizures, so best to find neurologist with experience and all the new tools