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Anyone else with Churg-Strauss or EPGA?

Autoimmune Diseases | Last Active: 9 hours ago | Replies (40)

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@mth13

MYH13:
Good news and then basmd: after tapering down from 20 mg prednisone and depending on NUCALA to control my eosinophils, I went down weekly by 2-1/2 mg and off. Within 3 days, my lungs began to fill with clear phlegm, my lower stomach ached, I became exhausted, and woke up this morning with extreme pain in my left hip. Could not stand on it.I assume this is adrenal weakness and went back on
3-1/2 mg prednisone this morning. Lungs are better snd I can walk on my left leg with less pain. I will taper down much slower and hope for the best. Any advice out there on this EGOA roller coaster? You are all dealing with so much, I hate to complain!
Love to all of you
MYH13

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Replies to "MYH13: Good news and then basmd: after tapering down from 20 mg prednisone and depending on..."

I am currently in hospital having just been diagnosed with epga, lots of pain and very scared. I’m having huge doses of prednisone but no other drugs yet